@amanda89, Welcome to Connect. I am pleased to meet you, and I am sorry to hear about your current health issues. I know how frightened you must be feeling because I am a transplant recipient, and can remember my own experiences while I was sick and waiting.

So - it sounds like you are waiting to be evaluated to be listed (eligible) for a liver transplant. It is a normal routine to have an annual check-up. And for transplant, it is always a thorough work-up. So I am confident that your current team is looking out for your best interest and future care. I am please that you have already met John- @johnshaw who has shared his experience with you. You will quickly learn that we all have different experiences. I invite you to ask any questions that you have. You are not alone.

Here are links I want to share with you. Each one covers a different aspect of the pre-transplant journey.
https://connect.mayoclinic.org/page/transplant/newsfeed-post/eligibility-for-liver-or-kidney-transplant/https://connect.mayoclinic.org/page/transplant/newsfeed-post/getting-listed-for-transplant/https://connect.mayoclinic.org/page/transplant/newsfeed-post/staying-positive-while-waiting-for-a-transplant/
@amanda89, Does your team know about your ER visits? Are they aware of your current situation?