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← Return to Autoimmune Retinopathy
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Eye Conditions | Last Active: Jul 14, 2021 | Replies (18)
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Hello, @mitchieandpete. Welcome to Mayo Clinic Connect. Sounds as though you are your fiance's advocate with her autoimmune retinopathy, which is great. It also appears that you two have been very thorough in consulting with specialists to get a diagnosis for her.
Hoping that @imallears @cehunt57 @pedie and @johnbishop will have some input for you on what to expect for the future with this disease.
Will she be undergoing screening for colon cancer, then? What would you say is most terrifying about the autoimmune retinopathy diagnosis for you two right now?
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@lisalucier
Hi,
Just to clear up, I have no experience with autoimmune retinopathy. I have had a detached retina 25 years ago and currently have macular edema which is being treated with Avastin injections . Avastin is used as an off label drug meaning it was originally used for cancer treatment but has been used successfully for macular edema and is one of the several drugs currently used by eye specialists to treat the edema.
FL Mary