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Post ICU Nightmares / Hallucinations

Intensive Care (ICU) | Last Active: Jun 16 1:51am | Replies (36)

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@kariulrich

I have had two vascular surgeries the last one was about 3 years ago and each I one spent unexpected time in the ICU before going to a unit. Although my surgeries were successful, the recoveries were exceptionally long. I find it very interesting that during your coma you were played audiobooks, and you hear them to this day. Have you ever done any research on auditory hallucinations? My sleep is a weekly battle, however, I do find I have fewer insomnia days now that my husband is out of the house than I did when he was here. When I married my husband (second marriage) I moved my two boys here to a small town so that he would not have to relocate for work. I was excited to raise my boys in a small town. After a year and a half of marriage, I was diagnosed with vascular disease. My diagnosis definitely changed me, but it made me a stronger person. Now that my symptoms are managed and I am doing better we just seem to be at different places. I will say I have not been as supportive of him during times when he was ill. I would get so angry when he complained about a symptom that ended up to be nothing. Maybe due to the fact that I did not feel supported as I should have been. I did talk about this with therapists. I just find myself empty when it comes to supporting him. I have nothing left to give. Not sure if this is making any sense what so ever! LOL, I admire that you are investing in yourself with strength training/exercise.

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Replies to "I have had two vascular surgeries the last one was about 3 years ago and each..."

I was just released from the hospital late Feb, and the things I’m hearing aren’t strong. They’re...like my neurologist said, echoes. It’s almost like something in the room triggers a memory and my brain brings up that audio clip, a word or a couple of indistinct words, yet because my brain isn’t fully healed from the trauma of being under yet, I can’t tell the difference between what’s coming from outside of my brain and inside. It freaked me out at first, but he assured me that it’s not altogether unheard of and that we’d reevaluate in a year. It doesn’t happen as often now, but in the first month post release it was all the time. He doesn’t expect it to get anything but better. And he’s an incredible doctor, so I’m not worried. He also attributed some of it to PTSD.

No, haven’t thought to research it. Honestly been struggling to figure out how life with what looks like SLE and two little ones is gonna look like, and then trying to recover without ongoing PT (had inpatient but we have no insurance so everything ended once I was released). I’m sorry to hear about your vascular disease. That sounds super painful!