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Post ICU Nightmares / Hallucinations

Intensive Care (ICU) | Last Active: Jun 16 1:51am | Replies (36)

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@kariulrich

That is what happened to me when I got home from this major surgery....my husband took time off work to help me, but he retreated down to his office until bed time, occasionally asking me if I needed something. I sat in a chair alone trying to heal, and would just sit and cry. I felt so helpless. I know they need time too..
But this was different this was being abandoned in my own home. I thought maybe I was being too needy, but when I look back it was not me being needy. I started to write down my fears during that time, to process what I was going through. When I read back my words years later it breaks my heart. Thank you @jslate for sharing about your auditory hallucinations....sounding like an echo...What your neurologist said makes complete sense to me. Also when you said words don’t match actions...YES!!!! I am sorry you had to live through so much trauma. Please know that your experience has helped me greatly to feel less alone.

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Replies to "That is what happened to me when I got home from this major surgery....my husband took..."

Oh honey, please don’t feel alone. I think there is a private message feature here somewhere and feel free to message me anytime. I understand completely, I really do—that feeling of wanting them to come be with you of their own volition. It’s awful. There’s something about the vulnerability of healing that simply strips us to our barest selves, and when we’ve done this with someone we’ve given our heart to, it’s such a fragile thing. There are no words for it. Or nearly none.

While I was under (coma, delirium, what have you), Hubby put headphones on my ears and played audiobooks for me. My mind did all manner of bizarre things with that, and then once I was ‘woken up,’ it took me several days to come to but I experienced delirium in the meantime and thus had all kinds of hallucinations, some of which were auditory. Now, while I’m doing housework or even lying down trying to rest or practicing my strength training, I’ll hear a voice or something that I know is either from an audiobook I heard, or some of the music that was played for me, and every now and then I’ll hear the ventilator. That’s the worst. That’s the sound that gives me the worst of the nightmares.

I’m so sorry this lead to separation for you. I’d love to talk to you more. It sounds like our experiences were at least somewhat similar. How are you sleeping right now? How long ago was your surgery?