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Post ICU Nightmares / Hallucinations

Intensive Care (ICU) | Last Active: Jun 20, 2023 | Replies (32)

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@kariulrich

@deltakay I am so appreciative that your shared your experience as I can relate to your struggles with your relationship, and not being the women he married. I did not want visitors at the time either I did not want my boys or my dad to see me in pain, but I wanted my husband there during the time I was having chest pain, thankfully my close friend came, it was the biggest blessing. I have seen a therapist, several in the past...sometimes it just gets tiring complaining about illness. I also have trouble sleeping, but with the opioid crisis physicians are Leary about sleeping meds and anxiety meds too so they have been taken away, or cut in half. I practice very good sleep hygiene but even with that it can be difficult to sleep. I was blessed with pulsatile tinnitus along with regular tinnitus...the ringing and swooshing never stop. Sleeping is difficult. Hang in there, it is so good to talk about this openly.

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I understand completely what you mean by auditory hallucinations. I mentioned them to my neurologist and he said they were like echoes from the ICU and that it could take up to a year for my brain to heal from having been placed in a medically induced coma. Still doesn’t make them any less terrifying, lol. I had ICU delirium, so the oddest things will be triggers for me. I now stay home with my two very young sons (5&3) and it’s a battle. I feel like my husband just doesn’t get it. He says he does, but then his words and actions don’t match. I don’t want to be left alone in the evenings because my husband came at 6 at night at the hospital, then left about noon the next day. After he left, while I was paralyzed with Critical Care Myopathy, I was stuck for hours alone and they didn’t give me one of those buttons that you can bump up against to call a nurse until I was moved into the Special Care Unit a month later. So that left me scared and alone for hours without the ability to call for help. It sucked. Not to complain about him, it was my call to ask him to stay with me during the night instead of the daytime (I never slept at the hospital, and despite it being a Critical Care Unit, they didn’t mind him sleeping there). Oh, I guess I should note that I’d been flown to a hospital about four hours away from home by then. Anyway, point is I hate being alone now, but Hubby comes home from work and disappears to the sunroom for hours to “detox” from his day at work and I generally don’t see him until time to put the kids to bed. I’m only 9 weeks or so from discharge, I’m still coughing up phlegm from damaged lungs, and my arms and muscles still hurt with whatever autoimmune disorder they found while they were poking around doing tests (UAB is a teaching hospital and I was there forever and nearly died on them four times, thus I became a perfect guinea pig). Long story short, I also sort of understand the tension you must feel with your husband and I am so sorry. I did feel supported while I was in the hospital, but the second we got home, it was like I was dropped quicker than a sack of rotten potatoes, which hurt because I thought we’d had this bonding experience through this horrific thing we’d just been through. It just made it ten times worse to think back on being in the hospital.