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Post Transplant Symptoms

Transplants | Last Active: Apr 23, 2022 | Replies (109)

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@dcbrenek

Hi @contentandwell and thank you for the welcome! I had to travel about 250 miles (about a 4-1/2 hour drive) for my transplant. I live in West Texas (about in the middle of Texas) and went to Dallas at Baylor Scott & White. They were nothing but nice and professional, although I did kind of throw them a curveball with my recent EBV illness. An interesting aside, when I was ready for transplant, I made the 4-1/2 hour drive to attend Clinic in December 2017. My lab results were not read until later in the day, but I was dismissed from clinic. After making the drive back, I barely re-entered the house when I received "the call." I was told I was sicker on the blood labs than I appeared in person, so I had to make the drive back to Dallas that same day. I knew I wasn't feeling that good - my MELD score had jumped to 35 (putting me at the top of the list in my region). Anyway, thanks for letting me ramble and thank you again for the support!

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Replies to "Hi @contentandwell and thank you for the welcome! I had to travel about 250 miles (about..."

@dcbrenek Oh my goodness, having to make that drive two times in one day must have been tough. I hope you had company for the drive. I have a bad habit of being lulled to sleep in the car so if I am alone I often pull over and grab a brief nap!

That's great that the hospital was so good and on top of things. I hear nothing but good about all of the transplant centers, although I do know some are not as high performing as others. I cannot say enough good about Mass General. Since they are relatively close I go there for basically everything now, except for my PCP. I love that hospital and how thorough they are. My local hospital pales by comparison.

No need to apologize, your story is interesting, and the end result is good. That's what matters.
JK

@screen Wow, a long day! Glad you made it all safely!
Ginger

@dcbrenek, That is fantastic! Please share what happened after you drove back ? Did you get the transplant right away? Did you have a caregiver??? Did you have a place to stay? I cannot begin to imagine how I could have driven anywhere after I got my call. I needed my husband to just guide me to the shuttle at the front entrance of the Gift of Life House!