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Transplants | Last Active: Apr 23, 2022 | Replies (109)
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Hello Rosemary!
I do monthly labs for my liver and the numbers are “outstanding” according to the surgeon. I am going to make a appointment with a specialist (Rheumatologist) because as you were saying, you have to be proactive. I also am going to see my transplant doctor for another matter, but will bring up the subject again. When I was writing the other day, the last paragraph was cut off. What I wanted to say was, throughout the ordeal I have kept my sense of humor and have tried to stay positive. All you wonderful people have helped immensely. I have never ‘talked’ with other transplant patients before. I do not feel so alone! Thanks!
Replies to "Hello Rosemary! I do monthly labs for my liver and the numbers are “outstanding” according to..."
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@gary1864, I joined Mayo Connect because I was looking for someone who shared my disease and who had transplanted. I never met a transplant patient before my transplant. And after release from emergency hospitalization at Mayo, I stayed at the Gift of Life Transplant House in Rochester. From observing and interacting with other transplant patients, i gained confidence that I could 'survive' the surgery that I feared. When I returned home I didn't know anyone with a transplant. So, we are alike in that we all help each other. I feel that there is a special bond because we really do understand the unspoken fears and concerns that we each experience.
The fact that you are having good liver numbers is a good sign! Do you take a written list of questions when you go to see your surgeon? I do and it helps immensely.
I think you mentioned tacrolimus. I have been taking tacrolimus and cellcept for 10 years and have not had any issues with it.
Gary, I don't know where to refer you, but we do have many groups here on Connect. I wonder of there is one that relates to what you are experiencing? Have you looked? If there is any way I can help you locate something, let me know.