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@dcbrenek, I am happy to add my welcome to Connect. I just returned home from my 10 year annual evaluation for liver/kidney transplant due to PSC (Primary Sclerosing Cholangitis). I have not seen the term cryptogenic cirrhosis, so I had to look it up. And I read that: _Cirrhosis is likely to have more than one cause and when the specific cause of cirrhosis is unknown, the condition is referred to as cryptogenic cirrhosis._ If that is what you had, I can imagine how confusing that must have been for you. I was actually relieved when my disease was given a name, even though it was an ugly one!
How long did you suffer with it before your transplant?
I also see that you have been quite ill in the past months. Has any of that affected your transplanted liver?
Replies to "@dcbrenek, I am happy to add my welcome to Connect. I just returned home from my..."
Hi @rosemarya! Thank you so much for the welcome! Congratulations on the 10 years since your transplants. I hope all is well. I would find comfort in knowing what exactly happened with my liver. I did not drink alcohol or do drugs or anything to abuse my body knowingly. I just have to put that in the past and forge ahead now with my second chance at life. My journey began about 5 years before transplant when my liver enzymes began to run elevated. I would say though that the year before the transplant was the most difficult with the usual stabbing pains, jaundice, sleepless nights and eventually having to be tapped every other week due to ascites. As far as my recent illness, contracting the EBV was traumatic in the fact that the doctors had to cut my immunosuppressive meds to "wake up" my immune system to fight the virus. This led to a partial rejection of my new liver (from which I have rebounded) in order to fight off the virus. So, after 3 brain MRIs, 4 spinal taps, a bone marrow biopsy, and a liver biopsy, things returned to semi-normal except for the lightheadedness problems that persist. I'm sorry to ramble on and on, but that's where I stand today. Thank you for providing support to me!
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@dcbrenek Thank you for joining us at the cyber table. It seems I learn new terms everyday!
@rosemarya How was your annual transplant evaluation?
Ginger