← Return to Post Transplant Symptoms

Discussion

Post Transplant Symptoms

Transplants | Last Active: Apr 23, 2022 | Replies (109)

Comment receiving replies
@gary1864

Hi JK,
Regarding the symptoms that I had before my transplant. At 28 years old I had mononucleosis, the following year I had a relapse and was off work for a month. When I retired from working for the State of Michigan in Foster Care; I had a mild heart attack, but also had another bout of mono, Epstein Barr, or whatever it’s called that lasted for 14 months (basically sleeping 16 hours day) until one morning I woke up and it was gone. I felt like Rip Van Winkle after that amount of time. In a short time however (about six weeks) I was hospitalized for Hepatic encephalopathy. It was so severe, that when they asked me my name, who was president, and what year it was, all I knew was my name. The long and short of it, is that it’s hard to say where one began and ended. Or if there was a ‘melding’ or overlap at different stages. I was very sick before my transplant; and now have had my current symptoms since the transplant in 2015. Without any self pity whatsoever, I have not felt good since I retired in November 2010. Just for laughs and giggles, I also badly broke my back requiring surgery in two stages (spinal fusion) just after 2013. I had just bought a house after my wife of thirty years divorced me when I became ill. I was lifting something much too heavy for me and broke it. I keep my sense of humor and plod on, but I hope that there is an answer for what I am feeling now. Thanks to all who have written, wonderful people one and all!

Jump to this post


Replies to "Hi JK, Regarding the symptoms that I had before my transplant. At 28 years old I..."

@gary1864 You sure have a lot of complex issues. It is tough to be able to pinpoint things with so many issues in your history. When I was hospitalized for an HE episode they also asked me who was president -- Obama was. I answered George Bush! When they asked me the date I felt like, heck, you stick me in this room with no outside contact, how do you expect me to know that?
You mention being divorced. I hope you have someone close by who is a support for you. We all need that. I hope too that you do manage, somehow, to get this figured out. I feel incredibly fortunate that I suffered no ill-effects after my transplant. I am in better shape, physically, than I had been for years, and mentally if there is some decline I think it's just a function of getting older.
JK