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Post Transplant Symptoms

Transplants | Last Active: Apr 23, 2022 | Replies (109)

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@contentandwell

@des46893 I did not know what CMV was, so googled it. It says:

Cytomegalovirus (pronounced sy-toe-MEG-a-low-vy-rus), or CMV, is a common virus that infects people of all ages. Over half of adults by age 40 have been infected with CMV. Once CMV is in a person’s body, it stays there for life and can reactivate. Most people infected with CMV show no signs or symptoms. However, CMV infection can cause serious health problems for people with weakened immune systems and for unborn babies (congenital CMV).

You probably already had it and being on immunosuppressants activated it. I’m sorry that you have to deal with this. If they keep you on the minimum amount of immunosuppressants will that help it not get reactivated?

I’m sure that those of us who are alive thanks to transplants are grateful for the gift of additional time we have been given but immunosuppressants sure can be difficult to deal with. They are working on something new to “trick” a person’s immune system to not reject the new organ, and then they will hopefully be able to eliminate immunosuppressants, but I’m sure that is a long way off.
JK

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Replies to "@des46893 I did not know what CMV was, so googled it. It says: Cytomegalovirus (pronounced sy-toe-MEG-a-low-vy-rus),..."

I too got CMV from my donor heart but except for the valcyte i take 900mg 2 times a day i have no symptoms. We keep testing and im told maybe we will talk to an infectious diesis dr if the extra valcyte doesn't get rid of it. But honestly there is no symptoms. A very small price to pay compared to my life before transplant.