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@gaylea1 You are doing well with the tacrolimus though, right? I took Cellcept for a while along with the tacrolimus and then they dropped the Cellcept. Our bodies are all different and we all react differently to the various drugs.
@gary1864 That's an interesting thought that @cmael has. Have you ever been tested for Lyme? It can be more difficult to test for after the initial time, which at this point you are beyond, but if some doctor could look outside the box of transplant maybe they could put it together. Is Lyme a problem in Michigan? I know it is in the coastal communities here in New England, I know a number of people who have had it or still do have it, now chronically. When I first had the symptoms that turned out to be from cirrhosis, I was tested for Lyme.
JK
Replies to "@gaylea1 You are doing well with the tacrolimus though, right? I took Cellcept for a while..."
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Hello,
The tacrolimus works well. Lab results are great. When I asked to be placed on another immuno suppressant to see if it might be a side effect of the medication; I was told that it was the best one, and they did not want to ‘risk’ trying me on another. I am going to research other meds so that I have a working knowledge when I talk to them again! Once again, that’s thanks to a wonderful suggestion.