@allegro Good morning, again. You mention that your children are helpful when they can, but also devastated by what is happening. Have you all sat together as a family, when your doctor meets with your husband? He might be a little more willing to accept what is happening to him and to you when he realizes that the whole family is affected. The future might not be what anyone wants, but it’s reality. He needs to know how this is affecting you and your health. When you meet with hospice to see how they can help, they might mention respite care. This is very short-term care at a facility. You could get the rest you need, knowing that he is getting good care.
Also, use your smart phone to tape visits with doctors, etc. This is what we’re doing to help my mother who has bladder cancer at age 95! Whoever goes to a visit with her, tapes the conversation and then emails it to the rest of us. It’s been a great help to everyone.
This must be so difficult for you! But, you have to take care of yourself if you want to take care of him. Becky