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Amyotrophic Lateral Sclerosis (ALS) Lou Gehrig’s disease

Caregivers | Last Active: Sep 30, 2023 | Replies (107)

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@merpreb

@allegro- This is why I suggest you call hospice, because he'll listen to the nurses. My husband refused to acknowledge that he snored- for well over 30 years! There is nothing like a stubborn patient! Has the doctor been frank with him and explained everything to him?
Who do you call when he's fallen? I get the responsibility thing but can you turn some things over to your kids? There is just so much that you can do. If he gives you grief about it just try and convey that you can't handle it all and that he will have to compromise.
Is his walker sturdy with a seat if he needs one? How do you get him into bed or out in the middle of the night? There are a lot of practical things that a hospice nurse can advise you on. When you call them they will meet with you and you can talk over things. You don't have to sign up. Will you give them a chance? Make a call?

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Replies to "@allegro- This is why I suggest you call hospice, because he'll listen to the nurses. My..."

I CALL ONE OF OUR BOYS WHEN HE FALLS, AND THEY ARE WONDERFUL ABOUT HELPING OUT...BUT THEY HAVE JOBS AND FAMILIES TO TEND TO ALSO, AND I FEEL MOSTLY RESPONSIBLE FOR HIS WELFARE.HOME HEALTH HAS BEEN A BIG HELP ALSO, AND THEY SEEM TO BE ABLE TO GET THRU TO HIM WHEN I CAN'T...I GOT OUT TODAY FOR THE FIRST TIME IN THREE WEEKS AND HAD AN APPT. WITH THE HAIR SALON.IT WAS LIKE HEAVEN FOR ME....MY OLDEST SON TOOK OVER AS HE WAS FREE THIS AFTERNOON...…..WHAT A NICE NEEDED BREAK...........