Hi @terri23851, welcome to Connect. It sounds like you certainly have a lot going on. I'm sorry you haven't been able to get any help yet. You might be interested in reading through the following discussion to see if it is helpful for you.

> Groups > Women's Health > Chronic Illnesses of Millions of Women Left Untreated
-- https://connect.mayoclinic.org/discussion/chronic-illnesses-of-millions-of-women-left-untreated/

I have no medical training or background but it may be helpful to use the Mayo Clinic Symptom Checker so that you might be able to ask some questions when you meet with the rheumatologist.
-- https://www.mayoclinic.org/symptom-checker/select-symptom/itt-20009075

I found this article on a headache that won't go away that may give you some more information.

Long-Lasting Headache: What It Means and What You Can Do
-- https://www.healthline.com/health/headache-wont-go-away

Have you found anything that helps with the headaches and dizziness?