← Return to Fibrosing mediastinitis

Discussion

Fibrosing mediastinitis

Lung Health | Last Active: Oct 20, 2023 | Replies (41)

Comment receiving replies
@jdjj

Hi. How long? I received the diagnosis two years ago, but it appears I've been living this encroaching fibrosing for a decade or longer though was only now feeling the effects. I live in the Nashville area and was fortunate -- to say the least -- to have a pulmonologist who trained under a Vanderbilt researcher (recently retired) who had been studying this disease for many years. He referred me to this doctor, one of his mentors, who was able to confirm the diagnosis, which led to the stenting.

Jump to this post


Replies to "Hi. How long? I received the diagnosis two years ago, but it appears I've been living..."

Hey. Do you mind sending the Dr. you went to. My husband was diagnosed 7 years ago at Vanderbilt and saw Dr. Loyd. He's been having complications recently and we don't know who he should since since his doctor retired.