Hi. How long? I received the diagnosis two years ago, but it appears I've been living this encroaching fibrosing for a decade or longer though was only now feeling the effects. I live in the Nashville area and was fortunate -- to say the least -- to have a pulmonologist who trained under a Vanderbilt researcher (recently retired) who had been studying this disease for many years. He referred me to this doctor, one of his mentors, who was able to confirm the diagnosis, which led to the stenting.