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@juy77- Welcome to Mayo Clinic Connect. I am the mentor for the Lung Health Group. Although I have never had a lung infarction I do understand that it is very painful. I have experienced a lot of pain from 2 lobe resections. It is my understanding, from what you have said that you were diagnosed with Fibrosing mediastinitis in October. Have your doctors discussed why you had an infarction?
@jdjj- I would also like to welcome you back to Mayo Clinic Connect. I see that this is your first post to this group. I am wondering how you found the research at Vanderbilt. How long have you had this?
Will you share some of your tips and methods that you use to help keep yourself comfortable?
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@jdjj thank you for chatting with me, it helps to know there are others. I get massage, use the Infrared Sauna, Chiropractic, get out every morning for a walk, hoping to oxygenate my blood. Dr Peikert seemed to think that is a good idea as well.
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Thank you, no one is really sure why the infarction happened, perhaps the pressure built up on one side of the artery that is being crushed and blew through is the thought.
No one seems to have an idea as to how long this has been growing, I had been having what I thought was rib pain for at least a year and half, also a cough for 6 months which I thought was allergies. I am usually fatigued and run low grade fevers with the Lyme Disease and Babesia anyway so never felt anything else was going on. I also have MTHFR, and wonder about the Genetic immune system connection.