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I do, I was diagnosed in December after having an infarction of the lung in October. Very curious to meet others who have this disease and possibly find some connections as to how we developed it. I have Lyme Disease and Babesia since 1993, wondering if anyone else has this as well?
Also wondering about the continueing pain, and fatigue....does this sound familiar?
Replies to "I do, I was diagnosed in December after having an infarction of the lung in October...."
@juy77- Welcome to Mayo Clinic Connect. I am the mentor for the Lung Health Group. Although I have never had a lung infarction I do understand that it is very painful. I have experienced a lot of pain from 2 lobe resections. It is my understanding, from what you have said that you were diagnosed with Fibrosing mediastinitis in October. Have your doctors discussed why you had an infarction?
@jdjj- I would also like to welcome you back to Mayo Clinic Connect. I see that this is your first post to this group. I am wondering how you found the research at Vanderbilt. How long have you had this?
Will you share some of your tips and methods that you use to help keep yourself comfortable?
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Hi. I have this disease. Excellent researchers at Vanderbilt believe one explanation for the disease is a body’s uniquely poor reaction to histoplasmosis, which is very common. For us, the body’s immune response kicks in and doesn’t shut off. I’ve had multiple lung stents to address the effects of the fibrosing. Hope this helps.