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What is the Living Donor Process Like?

Transplants | Last Active: Aug 9, 2021 | Replies (119)

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@marvinjsturing

A year ago last August, I was tested and approved for a kidney transplant at Mayo. Because of my history of pancreatic cancer, I was placed on the inactive list. I made it known that I was in need of a kidney. Two people offered to be living donors. The first one was disqualified because of medication she was on. The second one, my sister, filled out the online questionnaire and was scheduled for testing in late June. In early June, I went to Rochester for a PET scan. At that time, I met the final requirement of being cancer free for 5 years and was placed on the active list for a transplant. A few days later, my sister was diagnosed with Mantel Cell Lymphoma, a rare kind on non-hodgkin's leukemia. (She has now completed her chemo and is currently scheduled for a stem cell transplant in January. This cancer is not curable, but the transplant is being done to help extend the time she is in remission.) At this time, I am not aware of anyone working on becoming a living donor. I am scheduled to go to Nebraska Medicine in Omaha in January to be tested to see if I can be placed on their transplant list. The wait list at Mayo is currently 3 - 7 years and the wait list at Nebraska Medicine is currently 1 - 3 years.

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Replies to "A year ago last August, I was tested and approved for a kidney transplant at Mayo...."

@marvinjsturing Keeping my fingers crossed for you, and your sister!
Ginger

@marvinjsturing I will have you in my thoughts and prayers. I know the waitlist for kidneys is very long. My niece's husband was on dialysis for five years and finally had a transplant in August. He is doing fabulously now.

You don't mention where you live but I hope you do keep looking at transplant centers to find out where the shortest waits are, as long as they are at excellent transplant centers. When I was first a candidate for a liver transplant at Mass General in Boston they told me right up front that other regions would probably be able to transplant me sooner and mentioned a couple of good ones. I did some research too and was about to list at my second choice, Mayo, because they felt they could transplant me sooner than MGH could. Of course having the transplant close to home made MGH my first choice -- I live in southern NH and MGH is also very highly rated. I was able to get a transplant there at the same MELD that Mayo thought they could transplant me at.
JK