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Anyone going to 2019 NTM Physician/Patient Conference in Texas?

Posted by sayaboleh @sayaboleh, Apr 11, 2019

Hello - my name is Mary and I am new to the forum. I was diagnosed with Bronchiectasis /MAC in 2012 -- not being treated for now. I just registered for the conference next month and am looking forward to meeting some of you folks there, especially those of you native to Texas. This will be my first time at a conference as well as in Texas - can't wait to try the BBQ! I am mostly been symptom-free until this past month when I got a cold which refused to go away completely. I am feeling a lot better now but it has started me thinking about treatment (the big and dreaded 3). This forum has been super helpful as there are no support groups to speak of where I am in the San Francisco Bay Area. If there is anyone on this forum from this area, especially the East Bay, I would love to hear from them...

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

poppins | @poppins | Apr 11, 2019

I wiil not be going to the conference but the leader of our group in Dallas TX is "Nancy S. Lipson" <nancyslipson@gmail.com e-mail her and maybe you will be able to meet with her group. Cheers Grenda

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sayaboleh | @sayaboleh | Apr 11, 2019
In reply to @poppins "I wiil not be going to the conference but the leader of our group in Dallas..." + (show)
@poppins

I wiil not be going to the conference but the leader of our group in Dallas TX is "Nancy S. Lipson" <nancyslipson@gmail.com e-mail her and maybe you will be able to meet with her group. Cheers Grenda

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Thanks Grenda.

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dulwich | @dulwich | Apr 11, 2019

Hi
My name is Janet and I will be going. Hope to meet you, Mary, and that you stay well in the meantime

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deborahwolf | @deborahwolf | Apr 11, 2019

Hi Mary. My name is Debbi and I am planning to attend the conference. I look forward to meeting you and others who have MAC!

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jengelage | @jengelage | Apr 11, 2019

Where is the conference location and dates, pls?

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1 reply
poppins | @poppins | Apr 11, 2019
In reply to @jengelage "Where is the conference location and dates, pls?" + (show)
@jengelage

Where is the conference location and dates, pls?

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The University of Texas Health Science Center at Tyler and NTM Info & Research invite you to attend the 2019 NTM & Bronchiectasis Physician/Patient Conference on Friday, May 17, 2018 at the Gaylord Texan Resort & Convention Center in Grapevine, Texas, just minutes away from Dallas/Fort Worth International Airport.

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1 reply
poppins | @poppins | Apr 11, 2019
In reply to @poppins "The University of Texas Health Science Center at Tyler and NTM Info & Research invite you..." + (show)
@poppins

The University of Texas Health Science Center at Tyler and NTM Info & Research invite you to attend the 2019 NTM & Bronchiectasis Physician/Patient Conference on Friday, May 17, 2018 at the Gaylord Texan Resort & Convention Center in Grapevine, Texas, just minutes away from Dallas/Fort Worth International Airport.

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Here is the link. https://www.ntminfo.org/news/2019/01/register-2019-conference/

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poppins | @poppins | Jun 17, 2019
In reply to @sayaboleh "Videos of the presentations were recently posted. https://www.youtube.com/user/NTMir" + (show)
@sayaboleh

Videos of the presentations were recently posted.
https://www.youtube.com/user/NTMir

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Thank you for posting this link to u-tube. As there are so many can you pin point one that would give us more info on treatments etc. I will gladly in time see then all but it's overwhelming at the moment and some might be repetitious. Thank you.

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sayaboleh | @sayaboleh | Jun 18, 2019

@poppins I agree it is rather overwhelming -- even more so at the conference itself. I was very interested in the epidemiologists presentations but that's me. If you are interested in treatments I would focus on those that cover these topics (the conference agenda might be helpful and I will paste it below). I thought the most entertaining speaker was Jakko van Ingen and I did learn a few things about how they test for mycobacteria so I might start with that. Also, not all presentations have been posted as yet. I could not find the one on managing side effects - perhaps later today or tomorrow.

8:40 – 9:15 a.m. Epidemiology Around the World

9:15 – 9:45 a.m. Patient Panel Moderated by Anne E. O’Donnell, MD & Gregory Tino, MD

9:45 – 10:15 a.m. Environmental Factors & Reducing Exposure Rachel Thomson, PhD, MBBS

10:30 – 11:00 a.m. Evaluating & Treating Bronchiectasis Patients Gregory Tino, MD

11:30 a.m. – 12 p.m. NTM: Who, How & Where to Treat Charles L. Daley, MD & David E. Griffith, MD

1 – 1:30 p.m. The Role of the Laboratory Jakko van Ingen, MD, PhD

2 – 2:30 p.m. Comorbidities of NTM & Bronchiectasis

2:30 – 3 p.m. The Importance of Airway Clearance for Patients Patrick A. Flume, MD

3:15-3: 45 New Therapies Kevin L. Winthrop, MD, MPH

3:45 – 4:15 p.m. Patient-Focused: Nutrition & Mental Health
Kristen E. Holm, PhD, MPH

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