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@gingerw

@colleenyoung This is a great topic! We don't often think about all the organization that's required when something serious happens. Because I see two specialists and they are 100 miles away from where I live [one way] I keep copies of all of my lab results done, no matter who orders them. I can provide those copies to any medical professional who may need them. I take a notebook to every appointment and write all of my vitals down. I have pre-populated that page with any questions that I have thought about ahead of time for any visit that I make to a medical professional. Organizing finances during a medical event is crucial. Having someone that you can enlist to help you is a great thing because you might miss something or you need a second set of eyes to look at things. If you have a spouse or partner, that works fine. If you have a child you can trust, that works fine. Or reach out to a good friend and ask for their assistance. Whoever does it has to be somebody that you can trust. Educate yourself on what your insurance will cover. Don't be afraid to contact them if you have any questions ahead of time. They are there to assist you; you pay your premiums and they work for you! Education is power so don't feel bad about questioning things.
Ginger

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Replies to "@colleenyoung This is a great topic! We don't often think about all the organization that's required..."

I'm finishing up my transplant evaluation at Mayo Clinic in Florida next week, and having seen so many doctors and being given so much information, I will be making a notebook by specialty when I get home. I feel far more in control of my situation when I can be organized and I will be doing this. Fortunately, as soon as I received my liver failure diagnosis with a hospitalization for HE, I applied for Medicaid and Disability, and thankfully I was approved for both. My employer up to that time offered to continue paying in full for me to keep my BCBS, but I knew I couldn't afford the large copays for services so chose not to keep it and to get Medicaid instead. I'm having to rearrange my finances to survive on approximately 1/3 of what I made before and that is so devastating but throughout this process I've seen God at work and he has given me a peace about it so I'm not worried about the outcome.