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SPK (simultaneous pancreas and kidney) transplants

Transplants | Last Active: May 16 8:41pm | Replies (77)
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@jgloede9

I was never in dialysis. I tried very hard to stay off from it! I was at 12% function at transplant. I am very close to both Rochester an Madison. I am in La Crosse WI. Is there a way I could give you my phone number? I love talking about my journey but with my retinopathy and my neuropathy, talking at length via messaging is rough!

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Replies to "I was never in dialysis. I tried very hard to stay off from it! I was..."
Rosemary, Volunteer Mentor | @rosemarya | Jul 25, 2019

@jgloede9, I want to respectfully decline sharing my personal phone number. Mayo Connect is a socal media sharing network and as a volunteer mentor, it is my preference to communicate via this public forum. However, there is a PM -Private Message option (envelope icon top right of page) for sharing such information should you ever need to use it.

I drive thru LaCrosse WI every year on my way to Mayo from KY. Are there any transplant patients in the area? Or is there an Organ Donor Affiliate group that meets in the area where you can speak face to face with others?

I am still interested in hearing more about your journey . Are you able to share in small segments?

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Cheryl, Volunteer Mentor | @cehunt57 | Apr 3 1:22pm

@jgloede9 I’m reviewing this discussion start to present. I had a pancreas alone transplant in 2005. After the transplant my retinopathy reversed. My peripheral neuropathy went away and my autonomic neuropathy (gastroparesis) improved. How are you now?

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