I have thought about the Mayo Clinic again, but I’m just not sure what they are going to do. Last time I was there I came out with diagnosis that contradicted each other and the doctor I had had seen wasn’t very pleasant. It was after my son was born so about 10 or 11 years ago. Basically gave me diagnosises and said good luck. At the University of Iowa I had an amazing doctor who helped me thru the worst of the times and never once gave up. However he moved to Chicago to practice. I had to end up loosing my job and moving back to my hometown so I could be close to family to help with my son. And Omaha is not to far away but I have found a GI doctor that has read ALL my medical records and sticks by me. I don’t know if anyone else has the same problem I do but some doctors are just rude if it doesn’t jump out at them, that is frustrating to me.
I will look at the top hospitals and to be honest I’ve considered Boston and John H. Anything to get some relief to this new obstacle I can’t seem to figure out.
I’m greatful for your support and glad I got on this site. I have not talked to anyone else but support from one person who understands is extremely helpful. I can’t thank you enough. And I will keep you updated. On Thursday I had a very invasive and humiliating test done. Nothing I’ve been thru before and I was sure I’ve been thru it all. I have a sneaky suspicion nothing new is going to happen. And next week I take pills with markers to see how my colon is functioning. I try and stay positive for myself and my son, but this slowly started in October and blew up big time in February, so it’s getting hard to think positive. But having 3 major surgeries before age 4 and I just turned 40, it’s a little bit annoying (to say the least)
Thank you for talking and understanding. I’m very new to this but after the few that I’ve read, I feel we all need to head to Hawaii for a vacation, with doctors on call, lol.
That’s another thing. Who can plan a vacation with this stuff. I admire the people willing to give it a try. My son and I have made it on 2 vacations. Considering it’s just ya, I have to be careful, I don’t want something to happen and then he’s upset and stuck in the hospital with me. He shouldn’t have to carry my burden of health issues. He’s aware of them but I do my best to act like nothing is wrong, but this one is harder and he’s older. He said to me the other day “mom in a year I’ll have my permit so I can take you to the hospital when your sick” broke my heart. So for both of us I want to figure this out.
Sorry to ramble, it’s been a rough week.