Hi @caitie and welcome to Mayo Clinic Connect. You'll notice that I moved your message to this existing discussion about ET and lightheadedness. @shenriq posed a similar question a litte while back. Please click VIEW & REPLY to read the helpful information members shared. I'd also like to bring @wa34937, @stevehurlburt, @deborahgrace and @summerkrae into this discussion.

Caitie, what helps you when you feel lightheaded? How long does it last?

caitie, you didn't mention any medications. A large percentage of the population are deficient in magnesium. Many diagnosed with ET are prescribed Hydrea which causes loss of magnesium leading to a vitamin B1 (thiamine) deficiency as it needs magnesium to change it to it's active form. Thiamine deficiency has been linked to fatigue, loss of appetite and impaired cognition and peripheral neuropathy. Search on "krispin magnesium" and "mgwater" which are two magnesium informational web sites. Krispin lists other causes of magnesium deficiency in addition to the daily amounts and well absorbed forms. Also look into "nothing boring about boron" for It's many benefits. Research each of the B vitamins as they work better together. Benfotiamine is a fat soluable form that the body converts to thiamine offering longer activity. The link below expands on thiamin. Investigate liposomal vitamin C to inhibit bruising and purpura especially if you are using aspirin as aspirin causes faster loss of vitamin C and liposomal curcumin, to address itching. Benzene, toluene and formaldehyde are implicated as MPN causes. Continued contact could contribute to progression. Check products you are using for their content or in their use. For example paraffin candles when burned give of benzene and toluene. When sodium benzonate comes in contact with ascorbic acid benzene is created. Always consult your health professional before using any supplement.

ncbi.nlm.nih.gov/books/NBK4...