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alaking (@alaking)

Belatacept

Transplants | Last Active: Apr 23, 2019 | Replies (25)

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@alaking

I have an appointment on April 5th to see Dr. I know it's the meds. My sister is a nurse and we both researched it. At this point I can only stand for a little while before I have to hold on to something cause my tremors are so bad. Luckily I have a handle in the shower or I wouldn't be able to take a shower without assistance. I feel like I'm slowly dying

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Replies to "I have an appointment on April 5th to see Dr. I know it's the meds. My..."

@alaking, I am very concerned about you. Please don't hesitate to GO to the emergency room if your condition continues to decline.
Is someone with you or nearby if you need them?

I don't want to scare you, and I know that you must know what signs to be aware of. However. I suffered with acute kidney failure a couple of days ahead of a scheduled outpatient procedure at Mayo. And my native kidneys did not recover. It can happen so very quickly.

@alakin, I am thinking of you. I hope that you are feeling better. What has your doctor had to say or do to help you? Are you a candidate for belatacept or another medicine?