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Living with Prostate Cancer: Meet others & introduce yourself
Prostate Cancer | Last Active: Sep 10 6:24pm | Replies (648)Comment receiving replies
Hi Dave @dandl48
I'll be thinking of you tomorrow and tonight as you prepare for your biopsy tomorrow. I can imagine the waiting has been tough.
You ask about travelling distances of 6+ hours for follow up. I know that some people choose to be treated at Mayo, but see their local oncologist or MD for follow-up. The local doctor and Mayo specialist are in contact with one another. And the patient also can remain connected with the Mayo Cancer Care team through the online patient portal. I'm bringing @waynen @semeon @carlsonte @hodagwi and @kujhawk1978 into the conversation because I believe they have travelled long distances for treatment. They may have experiences with follow-up procedures from various institutions.
All the best tomorrow, Dave.
Replies to "Hi Dave @dandl48 I'll be thinking of you tomorrow and tonight as you prepare for your..."
I live here in Kansas City and have a radiologist, urologist and oncologist on my medical team who are quite competent. I went to Mayo for two reasons, I liked Dr. Kwon’s approach to treating PCa and they had the C11 Choline scan.
After the initial scan and consult in Jan 17 all treatment has been done here in Kansas City by my medical team - the Lupron shots, taxotere and the 25 more IMRT treatments. My radiologist did consult with my Mayo radiologist about the dosage, margins, boosts to the identified lymph nodes, treatment field...
I did return to Mayo three more times for subsequent C11 Choline scans and consults. Since I finished my last Lupron shot in May 18 all my urology labs and consults have been done here in KC. I updated my Mayo team through the portal and my medical team has also followed up with Mayo.
It’s your decision, depends on what your local medical team has in terms of medical technology, their approach to treatment and willingness to work with other medical experts as a team to develop and implement the best possible treatment specific to the clinical data associated with your PCa and your preferences as you balance quality and quantity of life.
I am blessed by a group of medical experts from a variety of practices and institutions who work together, leaving their egos out of the decisions.
Kevin
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Good luck. I haven’t been diagnosed yet, but I’ll see my dr next week to see next step. I maybe traveling to Cleveland clinic in Weston, Florida for treatment if I have what I suspect is prostate cancer.