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Worsening diplopia with no explanation

Autoimmune Diseases | Last Active: Dec 27, 2020 | Replies (47)

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@beka

Thank you @shellyleon_dd. What kind of double vision did you have? Was it like mine? I had also noticed that my issues, while milder in the beginning, go back to right after my twins were born. And while I was pregnant, my Crohn's was off-the-chart, crawl-in-the-corner-and-die kind of flaring. Do you mind me asking, did they find a cause for your kidney failure? I was in the hospital before the worst began with kidney failure, but they could never explain why it happened. I live in fear now, but my labs all say my kidneys are better now.

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Replies to "Thank you @shellyleon_dd. What kind of double vision did you have? Was it like mine? I..."

Hi @beka i am happy to help and answer any questions! I believe my double vision was different, although it’s been about 30 years since I had that symptom. It was side by side and I think it went away when I closed one eye. The acute kidney failure came out of nowhere and it was diagnosed as lupus nephritis; glomerulonephritis. I’ve been on cell cept, prednisone, and plaquneil since and am doing much, much better, although my labs have been up and down over the past year.