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Fibromyalgia: How do you cope?
Fibromyalgia | Last Active: Jan 27 7:56am | Replies (204)Comment receiving replies
@artscaping @lioness
I did not know it was such a problematic issue with the insurance, etc.
I have been with this doctor for a long time and she is a very good internal medicine doc. I guess she is protecting me. She said she believes that fibro is real but that they just have not figured it out yet. She knows about all of my symptoms and I was just trying to figure out what is wrong since I keep going in to her with these symptoms. She did a massive amount of blood work and urinalysis and everything is perfectly normal. Testing for some autoimmune things too and nothing. I was reading a link on a website called The Mighty and it had an article called "Little Known Symptoms of Fibromyalgia" or something like that. It described a couple of things that have been happening lately that are new like hot flashes and sweating as well as redness on the cheeks and tenderness on the scalp. I just recently started having these in addition to all of my other symptoms and so it made me think even more that maybe I do have fibro.
I guess it is something we just are left to figure out on our own, sad to say.. I am getting ready to start some water exercise and PT in the pool. Hopefully that will help as well. Thank everyone for the information and all the best to you.
Replies to "@artscaping @lioness I did not know it was such a problematic issue with the insurance, etc...."
@baxtersmom, @rwinney, @lioness.....Well ladies, I don't know if insurance would be an issue with fibromyalgia. Mine was another auto-immune based diagnosis.
Now, this may just crack you up. Your clinician believes that Fibromyalgia is real. My neurologist sent me to a rheumatologist who told me that there is no such thing as neuropathy....everything is fibromyalgia. Is that a cross over? She also told me that unless I was willing to change to Lyrica, there was nothing she could do for me.
Have a lovely evening.....we are on the 3rd night without TV because of the snow. About 8 inches. It is a no football weekend.
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Have you ruled out neuropathy via skin punch biopsy? I had many symptoms that mimicked fibromyalgia but the Rheumatologist said nope it's not that. Later I was diagnosed with Small Fiber Poly Neuropathy with biopsy. You spoke of symptoms I've had all along. Redness of face/neck/chest, tender scalp, inconsistent body temps. I sweat if I fold warm laundry and have a hard time acclimating between temp changes...neuropathy characteristics. Also, I've read that Fibro seems to cross over to SFN. Just a thought.