1. < Kidney & Bladder
Mentor

What's your experience with dialysis? Give & get support here

Posted by Rosemary, Volunteer Mentor @rosemarya, Mar 7, 2019

Dialysis is required if your kidneys don't function adequately on their own. Your doctor will discuss with you the type of dialysis that's best for you. Dialysis treatment is a serious responsibility, You'll need to work closely with your health care team who have experience in managing dialysis. Open communication with your health care team is essential to your overall health.

Fellow patients are a wonderful source of support and practical information because of a shared dialysis experience.
If you are a dialysis patient, or loved one of a patient, what are some things that you have experienced that might be helpful to someone who is new to dialysis? What kind of life adjustments have you had to make? How has it affected your everyday life?

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

Lagrange 5 | @lagrange5 | Sep 6, 2020
In reply to @gingerw "For those of you who have followed @kamama94 impressive kidney-friendly recipe books and recent issues with..." + (show)
@gingerw

For those of you who have followed @kamama94 impressive kidney-friendly recipe books and recent issues with sudden decline of function, she has asked I send out an update. After last week's permacatheter procedure on Tues she was readmitted to the hospital with complications. She had dialysis in-hospital Wed and Fri, and is home now. She will be having in-center dialysis, and has been approved for two weeks [I hope more!] of home health. Her family stepped up to help modify her living space to accommodate her new-to-her lifestyle. She will post when she has more energy. I know we all wish the best for her.
Ginger

Jump to this post

Thank you for the update.

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 6, 2020
In reply to @gingerw "For those of you who have followed @kamama94 impressive kidney-friendly recipe books and recent issues with..." + (show)
@gingerw

For those of you who have followed @kamama94 impressive kidney-friendly recipe books and recent issues with sudden decline of function, she has asked I send out an update. After last week's permacatheter procedure on Tues she was readmitted to the hospital with complications. She had dialysis in-hospital Wed and Fri, and is home now. She will be having in-center dialysis, and has been approved for two weeks [I hope more!] of home health. Her family stepped up to help modify her living space to accommodate her new-to-her lifestyle. She will post when she has more energy. I know we all wish the best for her.
Ginger

Jump to this post

Thanks for the update on Kamama, @gingerw

@kamama94, I really appreciate your taking the energy from the small reserve that you have to update us through Ginger. As you may not have energy to write, I hope that our messages bring you comfort and possible pleasant distraction. From my corner of the world, I paint a lovely Sunday morning with sunshine and cooler temperatures. I sit with a lovely cup of tea in my tiny garden that for me is paradise. I read. I pull a weed or two. I watch the butterflies. I repeat. I hope you can picture it.

REPLY
trishanna | @trishanna | Sep 6, 2020

@kamama94 You really are on the road back to feeling good - even though your road is bumpy and a bit foggy! You have fought with courage and determination before, and you can do it again. Know our thoughts are with you tonight. Look forward to hearing from you!!

REPLY
kamama94 | @kamama94 | Sep 7, 2020

@trishanna (and all my other friends here) Am improving slowly. I so much appreciate your support! It is giving me strength. Thank you. As always, Love and Hope live here!

REPLY
kamama94 | @kamama94 | Sep 7, 2020

question for anyone about permacath central line: sm amt dark blood leakage under tegaderm dressing - is this normal or should I call somebody?

REPLY
2 replies
Lagrange 5 | @lagrange5 | Sep 7, 2020

Thank you for reaching out. It may not be anything serious, but you should err on the side of caution and not take any chances. Please make the call. Regards.

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Sep 7, 2020
In reply to @kamama94 "question for anyone about permacath central line: sm amt dark blood leakage under tegaderm dressing -..." + (show)
@kamama94

question for anyone about permacath central line: sm amt dark blood leakage under tegaderm dressing - is this normal or should I call somebody?

Jump to this post

I agree with @lagrange5 that it is best to be safe, and make the call to be sure.
Do you have a contact number for after hours?

REPLY
Mentor
Ginger, Volunteer Mentor | @gingerw | Sep 7, 2020
In reply to @kamama94 "question for anyone about permacath central line: sm amt dark blood leakage under tegaderm dressing -..." + (show)
@kamama94

question for anyone about permacath central line: sm amt dark blood leakage under tegaderm dressing - is this normal or should I call somebody?

Jump to this post

@kamama94 Until you are comfortable with all the new-to-you changes, my suggestion is to always make the call. Since you are in a fragile space, your doctor and techs need to know you will pepper them with questions for information. It's to their benefit, also, to stay ahead of any issues that might escalate. And tell them that. Then bake them something as a thank you, or have a friend do it for you!
Ginger

REPLY
trishanna | @trishanna | Sep 7, 2020

@gingerw @kamama94 Remind me, Ginger, to invite you to my next post surgery hospital room. Think you offer some good thoughts! Take care, Kamama!!!

REPLY
kamama94 | @kamama94 | Sep 8, 2020

This is Tuesday. Some American Indians say, "Today's a good day to die," as a statement of bravery and determination. Whenever I hear or read that I think to myself, "It's also a good day to live!"

Hope everyone has a good day!

Love and hope live here.

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.