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High platelet count: What does this mean?

Blood Cancers & Disorders | Last Active: Feb 11, 2023 | Replies (95)

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@susanellis

My daughter, age 39, platelets went to 1.5 million recently. Her blood work showed ET (CALR). She also has acquired Von Willebrand. She was started on HU. She had a bone marrow biopsy which confirmed her blood work. Platletes are decreasing. Good luck.

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Replies to "My daughter, age 39, platelets went to 1.5 million recently. Her blood work showed ET (CALR)...."

Thank you for the informative. What is HU? I’m glad your daughters platelets are decreasing.

i have the same diagnosis...ET (CALR) and AVW. My platelets started at 2800 (now down to 1000). I now take 1500 mg of Hydrea daily but my wbc are now too low. Doctor playing with meds now. I'm 53 years old and weigh 105. HU definitely makes me tired and fatigued. How is your daughter doing now with all of it? Yes...I realize its been a while since your post. Thanks!