← Return to MAC again

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MAC again

MAC & Bronchiectasis | Last Active: May 4 11:10pm | Replies (27)

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Profile picture for Sue, Volunteer Mentor @sueinmn

Hello Shifra - Everybody is different, with their own physiology & other medical conditions to consider. Was the return of MAC diagnosed with multiple sputum specimens, or is this an assumption based on symptoms? I would be sure the MAC showed up in multiple cultures, and that sensitivity tests were conducted before I even considered the meds a second time. There are people on this list (like Terri) who have worked out alternative regimens with their doctors. Make sure you have a pulmonologist and/or infectious disease specialist who is well-versed in MAC on your treatment team. Good luck!

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Replies to "Hello Shifra - Everybody is different, with their own physiology & other medical conditions to consider...."

Hi Sue,
Once again my sputum had been negative for a few sputum test (and then positive and negative again) and now positive. What are your thoughts on these ups and downs? I see my infectious disease doc in Feb and decided I won’t go back on the big 3 again. Obviously it doesn’t work for me and after ototoxicity from Azithro I am done having the “cure” be worse than the disease. Is it common to have positive and negative sputum ad infinitum? Sorry for the frustration seeping out. I just can’t do it for a third time.
Thank you! Carolyn

Hi Sue, just wondering if it is safe for me to get my Covid booster later today.i am growing abcsessus and avium at the moment but I am not on treatment. I am coughinh up sputum which is slightly green but I have no fever. I asked my GP and they said to ask the pharmacist who is giving me the jab. I am quite anxious about this. Any advice? Thanks