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Cauda Equina Syndrome: Pain, symptoms, management and prognosis

Spine Health | Last Active: Apr 18 10:19am | Replies (60)
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@badapple

Reading my reports is what could me to investigate CES, now I have to teach my doctors. Car accident 4.5 years ago. Living in pain hell, nothing has helped. Burst fracture of L1 resulting in compression and only 10% of vertebrae remains. A long list of attempted relief. None effective. Seeing second surgeon consult next week. Can anyone suggest what I need to tell them? Ask them? Any hope this far out?

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Replies to "Reading my reports is what could me to investigate CES, now I have to teach my..."
badapple | @badapple | Mar 19, 2019

Clued me, not could me

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qball2019 | @qball2019 | Mar 19, 2019

@badapple
I hope your surgeon is able to offer you some relief and that you don't end up with any permanent nerve damage or symptoms. Nobody should be left to sit with CES. You need to stress to the doctor how all of the symptoms are affecting your life and make sure he knows the intensity of them as well. If the doctor gives you any flack make sure you stress your concerns. The doctors are supposed to be working for you and you are being charged ridiculous rates for them to do so. After my experience in the medical world I have a whole new outlook. Please keep us updated!

I don't know what the outlook is on whether you will have permanent nerve damage or not. From what I have researched on my own it seems like it's a 50/50 chance. The surgery that I'm looking at has a 2 year recovery period because nerves take so long to grow back or repair themselves. One of my doctors has had the same surgery and she said it takes all of the 2 years for sure to recover. I'm scared to death about permanent nerve damage. I have all of the cauda equina symptoms going on and now last week I was told I have peripheral neuropathy, allodynia, and hyperalgesia as well. I guess that means that there is already some permanent nerve damage. My accident took place many years ago and I've suffered with severe pain ever since - just slowly spiraled down over the years. Just as of June 2018 the cauda equina has really kicked into high gear and I've been going down the tubes ever since.

Hope this helps you a little bit

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