← Return to Cauda Equina Syndrome: Pain, symptoms, management and prognosis

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@lisalucier

Hi, @skiprel1957 - welcome to Mayo Clinic Connect. I realize that though many people experience low back pain, the pain that comes with Cauda Equina Syndrome can be very severe.

I'd like to invite into this conversation @johnbishop @dawn_giacabazi @kariulrich @jenniferhunter @jefferie to offer their input related to the extreme pain you are experiencing, and the way the pain meds are not helping very much.

Are you a candidate for further surgery to address this, @skiprel1957?

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Replies to "Hi, @skiprel1957 - welcome to Mayo Clinic Connect. I realize that though many people experience low..."

Not sure about anything right now. My surgeon stuck his head in the sand and has not told me anything about CES. See a new surgeon Monday. There may be A surgery on the nerves, maybe a nerve stimulator, but this info is what I've researched on the net. I do have a Neurologist I've been seeing for about 15 years. Matter of fact he recommended the Surgeon that performed my surgery. The next meeting with him should be interesting. I'm hoping the new Dr. I'm seeing Monday will have some insight on CES and will be able to help. Having such a rare thing like CES makes it so bad because the Doctors I've dealt with so far have no idea what to do. Research I've done only yields information on what CES is and the emergency surgery needed within the first 48 hours. I have found nothing about what to do, post surgery, frustrating. Thank you for responding.

OMG! I'm in tears I found my people. Hard for me to do on this site. 16weeks post, laminectomy. I suffered for 6 years to get an mri , crazy I know. Doc just wanted more pt. He still refers to it as spinal stenosis, which yes was also a factor but, CES is why I have permanent nerve damage, weak L. Leg. Drop foot, retaining bladder. Hey no saddle feels. ( joking. Not a bonus) @ 61 y/o. Also have, A Lawyer, A new doc. Partridge in a pear notwithstanding. 🤭 glad I found you.