@rwinney hi Rachel. Nice to hear from you. You have had a really rough time of it! Glare and bright light bother me all the time but especially post operatively. I’ve had a few years with some stability from the corneal dystrophy and have been able to drive. Some destabilizing now, may need more laser surgeries, not yet at the point.of needing transplant. I have another unrelated illness that I am also struggling with, improvement with help from Mayo in Rochester. I’m not totally sure about all the factors that contribute to the photophobia. For me, it’s that the layers of the cornea are unstable and not flush with the eye. They don’t seem to act like the filter they are supposed to be. The neuro ophthalmologist continues to be helpful to me. Maybe yours will have some ideas? I think is good that you are getting the nerve and corneal specialists to weigh in. I hope they have some ideas. I know mine is worse as the day goes on and glare is especially uncomfortable. When the nerves are inflamed it is worse. Sorry for your struggle and I hope we can stay in touch to share the battle and potential solutions! Best wishes, Rhoda.