Hi there. I was diagnosed with MDFD about one month ago. I am a 50 years old. I mainly had pain for about a month in my right eye before my diagnosis. Like tootache pain. Pulsating and continuing for hours before it relaxed a bit. Also woke up during the night because of pain. I could not tolerate light and only after the sun went down I could feel a bit more comfortable. Together with the pain came a lot of anxiety about going blind or having a horrible disease. After the diagnosis the anxiety increased but now it is getting better as also second opinion excluded other eye diseases and re-confirmed MDFD. Tuesday i will visit a neurologist to check if there are other problems since the area around my right eye and the skull are also painful. Combing my hair at that area is painful and the skin has a burning sensation. After the diagnosis I got a bondage medical lens and that indeed took the edge of the pain. After two weeks the bondage lens was removed to find out what is the current situation. The eye burns every now and again and I get occasional stinging pains and flashing pains that are upsetting and cause anxiety. I drop tears and gel during the day at will. This means I use drops and gel all day long. At night I use fatty creme. All described by doctors. My options are laser treatment (scraping top layer) or bowman layer transplantation if the situation does not stabilize or improve. Now I can use the telephone and the computer without getting too much pain. First I could not tolerate any screens. Also the tiredness of the eyes improved a little bit. Overall I am still not very happy. Vision is stable, not bad, but sometimes blurry and I get eye strain very easy. At the moment the eye feels like I got some punches on it. I am somewhat reassured that the conditions seems to be non-progressive and does not cause blindness or deteriorating vision/progressive vision loss. I too am seeking other people with the same condition as it seems the other people I have talked to so far do have (much) milder symptoms and symptoms seem to vary person to person. I am willing to discuss in the public forum or through email or other means of communication. Edit: I forgot to mention that the tear tubes in my eyelids are chronically infected, which does not help with MDFD. I wash my eyelids in the morning and before I go to sleep. I use warm towels to melt the eyesand before I remove it. All with all taking care of the eyes has become a full time job.