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Diagnosed with MAC but not being treated
MAC & Bronchiectasis | Last Active: Apr 15, 2023 | Replies (100)Comment receiving replies
I nebulize the albuterol and saline twice a day and do the Amikacin inhalation treatment once a day. I do the albuterol and saline at 4:00 a.m. then go back to sleep until 6 LOL! I take the nebulizer to work and do the next one around 4 in the afternoon. I just wash the pieces in hot soapy water. Then before bed I do the Amikacin treatment which is 10 x more time consuming with how you have to wash and sterilize each time. But it works and the more you do it; the quicker it goes. Totally worth it.
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@suzyqueue I am so impressed with your 4am commitment! Good for you. If we go to the gym at 4;45am, and then I do my therapy, I often want to nap before work. I don’t think the doctors -or anyone who doesn’t have lung disease - can fully appreciate how exhausting 40 minutes of: nebulizer/postural drainage/forced coughing can be...this disease requires self discipline, (and for me, God’s help and a sense of humor) to be sure!