GI Disorder and Internal Shaking

Check for pots, MALS and other compression syndromes.

I am feeling accurately same as youu feel and just let me know if you find a speedy recovery for this symtoms.

Hi. I have the same issues and have been trying to find answers for a very long time. The one thing that I have recently realized is that when I have certain milk products or foods that contain milk ingredients (which is a lot of foods), the internal shaking seems to be worse for me. I am looking into a possible food intolerance as all other medical testings have come back negative.

I have lactose intolerance so milk products fill me with gas which, if too much, can feel like internal shaking. Some people are helped with Lactaid. I have better luck avoiding dairy. There are a lot of non dairy “cheeses” and other types of milk now that I think taste good. But that’s after years of having to go without so they are a treat for me.

Thanks for the reply. Knowing that this causes your internal shaking gives me hope that perhaps it is the reason for mine. I will try to completely eliminate milk and see if my shaking subsides.

I get upset that my parents ignored my Celiac disease. It's clear that something was wrong with me.I see it in my baby photos and as a child I had a huge abdomen. It effected my cognitive abilities, extremely shaky, acted strange and yes, I was ignored by my parents. I guess they were narcissistic parents who only thought of themselves. Either way, it's neglect and I blame them for not doing something about it. I was the Susan Boyle of my time. Called dumb, ignorant, stupid, whatever! I was also bullied as a child. Mistreatment by relatives and friends! That's what Celiac can do to you when not diagnosed and I've had it for over 60 years...until tested. No milk, no soy, no chocolate, no grains, etc.I'm sure I have damaged villi. I have to eat small meals, or else I'm sick like I feel today. Most GI specialists don't have a clue and are useless. I've heard Celiac is on the rise.

Parents should take parenting classes before they become a parent. Mix in divorce and the nuclear family unit is destroyed. If the husband or wife strays, give them a second chance. Divorce is not an option. Your child is number one and needs two biological parents. Too many kids are neglected or killed in a divorced home. Being a RN, I've seen the abuse children have suffered when the nuclear family unit is broken.

@oakbourne - I understand your anger. You said-we are our parents. Very true. I have inherited gallbladder problems from my mother, high cholesterol and Type 2 diabetes from my father. It makes me a bit disappointed that all the efforts to avoid these illnesses with diet, exercise and medication and excellent doctors I still end up with the predetermined illnesses. I’m probably in a better place now because of early treatment.
In addition I had autoimmune colitis etc. etc. Some years ago I started seeing a therapist- illnesses were overwhelming and family didn’t really understand. It has helped me a lot and I continue to go. Have you been seeing a therapist?
Celiac appears more common now- I don’t know if it’s because It is better known now and part of early testing in children. I grew up in Sweden, where celiac is common. When I arrived here I was surprised that stores did not carry gluten free foods. My 2 daughters have it.
One of my daughters also had Cushing’s, similar to you undiagnosed for years and causing a lot of damage. She was tested on and off during her childhood for thyroid abnormality, because of puffiness of the neck. Once she was diagnosed the doctor looked through photos since early childhood and could detect that there were changes. His goal was to educate doctors to recognize the disease early. Unfortunately, medical school never goes very deep into rare diseases.
Sorry about the long story- just wanted you to know that you are not alone.

My problem isn't an every day occurrence, but when it does come on, it is mostly at night when I'm laying down to rest. It almost seems to start when my Digestive system reaches a point of distress, either from something I may have eaten, or possibly from taking too much to combat my gut issues like Probiotics, magnesium, digestive Enzymes, lemon water, or Peppermint oil. It's truly hard to tell, but my gut goes into such distress that my body breaks out into tremors sometimes lasting about 30 minutes. Doesn't help that I panic, but my wife is a godsend and gently rubs my belly in a form that actually brings relief and gets my mind off things. The tremors are specifically in my lower abdomen and from there radiate to my legs. I can visually see my thighs twitching from the tremors. I'm going in for a colonoscopy on December 9th to rule that out, but have to admit this is concerning. I'm very focused at the moment on healing my gut, cause I feel there is truly a connection between gut health and so many diseases and symptoms these days.

Hi everyone. Well I'm here because I have been having the same internal tremors. Mostly at night but also starting throughout the day. Because I have been diagnosed in my early years with anxiety this is where the doctors always go to. I am on omeprazole because originally I would wake up with Tremor's just in my stomach. That all calmed down but with the stress if this past month or so I'm waking up with the racing heart which goes into sweating momentously and the shakes. It's starting throughout the day and I mostly feel shaky in my legs. When I sit down for the day, usually after dinner it starts. I'm feeling like it's really starting to affect my whole life in general because I hate this feeling and resisting it saved making it worse. I've had this problem on and off. All my tests have come out fine also accept for being diagnosed with SVT which isn't the cause. I used to think it was constant overstimulation and then my nerves take forever to get. I would appreciate any suggestions for calming this down. I have been put on xanax. I'm not usually a pill taker, but I'm desperate to feel normal! Even a turn over in bed will start these symptoms while asleep.

Hello @renmon56 and welcome to Mayo Clinic Connect!

I am sorry to hear of the problems you've had with internal shaking. You don't mention how long you have experienced this problem, but that might be a helpful piece of information. You've mentioned having lots of tests, and I'm wondering if you have ever been evaluated by a neurologist? If so, what tests did the neurologist perform?

In order to sort out these problems, It might be helpful to keep a journal of these symptoms. Keep a small notebook, or recorder, nearby during the day and write down the time when these tremors occur, what you were doing at the time (f you are using a hand-held recorder you can dictate this information). If you were eating, how big of a meal was it and was it high in protein or carbohydrates, etc.? This might help you and your doctors to find some triggers for these tremors.

You mentioned that you have previously been diagnosed with anxiety. To control that do you exercise on a regular basis. Exercise of any type can be helpful, it does not have to be high impact. There are lots of YouTube videos that you can pull up that have seated exercises. Have you ever tried exercise to relieve the tremors?

I look forward to hearing from you again. Will you post an update?