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Waiting for an altruistic donor
Transplants | Last Active: Feb 19, 2019 | Replies (11)Comment receiving replies
I have been bold. I have posted on social media and made flyers.
They have been “talking” to a person of interest since November. I have two back ups. It’s taking so long that I was wondering what the hold up is. That is why I was wondering how many others are waiting.
I would hope if there isn’t movement on the one at hand, they would continue to the next on the list.
Replies to "I have been bold. I have posted on social media and made flyers. They have been..."
@morty, I don't know if you have seen this information. I want to pass it along to you from the Mayo Connect Transplant Page. You can view a recipient tool kit and a living donor tool kit.
https://connect.mayoclinic.org/page/transplant/
Here is a newsfeed article that might be helpful, too. - Nondirect Donor Q&A with Kay Kosberg, R.N., C.C.T.C.
https://connect.mayoclinic.org/page/transplant/newsfeed/nondirect-donor-qa-with-kay-kosberg-r-n-c-c-t-c/
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@morty
Great job being proactive!!! Sounds like you've really set yourself up for success.
I know it's hard but you have to trust the process. Your transplant center wants the best outcome for you and your donor. Maybe they found a great match for you and something needs to be retested in that person? Maybe you are being considered for part of a chain to find you an even better match, who knows? I realize it is tough waiting...been there, done that, living happily ever after. The best possible thing you can do right now is stay as healthy as possible by resting, avoiding germs that could alter your blood and most of all not stressing out. It helped me to pray for my unknown donor during my wait.
You sound like an incredibly strong and proactive pateint which will serve you well post transplant. Wishing all of the best.