Rosacea

Posted by soteloli @soteloli, Feb 13, 2019

I am interested in being part of a discussion group regarding the challenging treatment and psychological effects of this skin disorder ; my son was prescribed steroids in the past and now is dealing with the long term consequences of resistance and has ongoing flares , it has greatly effected his self esteem because he works with the public , people have also been unkind to him and have made fun of him
Our dermatologist has not been helpful with more aggressive treatments
Please help

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

Ethan McConkey, Moderator | @ethanmcconkey | Feb 13, 2019

Hi @soteloli it must be heart-breaking finding no help for your son.

I wanted to introduce you @faithshouse and @seanlroop as they have both mentioned rosacea in the past and may be able to offer you support.

Back to your son @soteloli what treatements has your son had? Just the steroids? Has he had anything else?

faithshouse | @faithshouse | Feb 13, 2019

I am sorry to hear about your son. I'm still not sure of why I have this itch, but just learned to live with it. I understand that spicy foods exacerbates roseacea, as well as washing with hot water. Sometimes I think cheese might cause a flare up of itching. Sorry I can't be of more help. But I'll be thinking of your son.

tinkerbell | @tinkerbell | Feb 14, 2019

@soteloli - Hi from Tinkerbell: I have Rosacea, GCA and am Hypothyroid. A few years ago I had a really bad bout with my Rosacea and the Metrogel was not working. My dermatologist put me on Soolantra (ivermectin) cream 1% and Doxycycline. This did the trick and I was finally cleared up. At that time the Soolantra was a fairly new cream. My insurance did not cover it and I paid about $100 for the tube. You may want to read about the cream and then talk to your doctor. Good Luck! Also, I recently tapered off of Prednisone and my dermatologist told me that my rosacea would get worse during the tapering . She was right and it did get worse . I just continued with the Metrogel and finally cleared up.