Hearing Loss: Come introduce yourself and connect with others

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

@nla4625

@dwi. I'm sure others will have some good tips on how to hear better in the situations you described. I personally have no qualms about asking people for help. Could you get together with the people you'd like to be friends with to talk one on one in a quiet setting? You could explain that you'd really like to get to know them better but you're having trouble hearing them clearly in group situations. You could ask them to speak slowly, really watch their faces as they talked, listen intently, and get used to how they speak. I should think they would be flattered you want to get to know them and be willing to help. If they don't, you probably don't want to know them anyway. The place where you live sounds beautiful. Good luck. Nancy

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Would this be with or without masks? Inside or outside? With or without soft music? (The covid pandemic has changed everything?) Will you and your friend be at least six feet apart??

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I am glad to help anyone in this group. As VP of a subsidiary for Siemens Manufacturing, I worked with the FDA on the specs on hearing instruments that were required; I trained many professionals on how to build hearing instruments; I taught classes to physicians and audiologists on hearing instruments and programing and went on to get Board Certified and my Masters in Auditory Prothesis. I had 4 clinics (last one I sold to Siemens) and was a guest speaker at hospitals, conventions and organizations. The help that I can give is more about how to use the system to find what you need, ie. where foundations give out free hearing instruments, where to get assistive listening devices, even how to get fit by the manufacturer in special cases. This world is changing so fast and pricing is so inflated - what to choose, where to go is important. I have a world of knowledge, but I'm retired now and enjoying it. My husband is severely hearing impaired so he was my guinea pig on trying out all new products and what is advertised is regulated by the FDA on what benefits you can say these new devices will provide. Happy to help. Gina

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@th1

Would you possibly be able to speak virtually about this at my Hearing Loss Chapter meeting Saturday May 1st?

Cheryl Nolte, President
Treasure Coast Chapter
HLAA

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Would love to at a later date. Home now after cancer surgery and dealing with some complications; not quite up to par. But in the future, we would love to and we provide everyone with free resource guides and once covid is over, free otoscopic checks. We can also check their instruments for distortion, so keep our contact info on file. My husband is severely hearing impaired, but after leaving Boeing as an engineer, he was trained and certified in hearing instrument repairs and can also fix anything. We are a great team!! Gina

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@th1

Would you possibly be able to speak virtually about this at my Hearing Loss Chapter meeting Saturday May 1st?

Cheryl Nolte, President
Treasure Coast Chapter
HLAA

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Cheryl, after discussing this with my husband, and I noticed you said virtually, which I didn't before (sorry I have MD), I might be ok by then. Do you have a contact email and I can send you the program we give on our public presentations? Thanks, Gina

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@louisequale

Would this be with or without masks? Inside or outside? With or without soft music? (The covid pandemic has changed everything?) Will you and your friend be at least six feet apart??

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@dwi. Oh, my...for 3 minutes I forgot about COVID when I suggested you get together one on one with other people. I'll take my suggestion back if I may. I personally would not do this now so feel badly I suggested you do it. Thank you louisequale for bringing me back to my senses. Nancy

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New to the community. I am Manish age 23 from India going through Single Side Deafness in my right ear from birth with profound sensorineural hearing loss and I have one normal left ear. I want to know what are the possible solutions for me at present for my right ear and also if my left ear gets hearing loss in the future?

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@maaniverma

New to the community. I am Manish age 23 from India going through Single Side Deafness in my right ear from birth with profound sensorineural hearing loss and I have one normal left ear. I want to know what are the possible solutions for me at present for my right ear and also if my left ear gets hearing loss in the future?

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Hello Manish. Welcome to Mayo Clinic Connect. Do you use any hearing technology now? There are some technologies specifically for single sided deafness. Among them bicross hearing aids and bone anchored hearing aids. (BAHA). I encourage others in this forum with single sided deafness to share their experiences with you.

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@julieo4

Hello Manish. Welcome to Mayo Clinic Connect. Do you use any hearing technology now? There are some technologies specifically for single sided deafness. Among them bicross hearing aids and bone anchored hearing aids. (BAHA). I encourage others in this forum with single sided deafness to share their experiences with you.

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Thankyou julie, for requesting others. At present I am not using any hearing technology. I can hear normally from my left ear. I am just 23 and afraid to use devices which can be seen from naked eye.

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@maaniverma

New to the community. I am Manish age 23 from India going through Single Side Deafness in my right ear from birth with profound sensorineural hearing loss and I have one normal left ear. I want to know what are the possible solutions for me at present for my right ear and also if my left ear gets hearing loss in the future?

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@maaniverma Ah, when I was young (19) a blast from a big gun did real damage to my left ear, but I ignored it for decades.. missing out on all sorts of sounds.. now rock musicians and avid concert goers have hearing loss from wanting to feel the music... The Hearing Aid manufacturers and marketing people depend upon the vanity of those with hearing loss.. Certainly you can get "in the ear" devices that you can hide in your ears. I wear an hearing aid in my profoundly deaf left ear that broadcasts to my slightly better right ear hearing aid.. This system works really well for me when I am in a car and not driving or when sitting at a table with several people that I care about what the say. People spend a lot of money to decorate their ears with jewelry.. I would say come to grips with the reality of life... and find out the extent of your injury or problem. Do the work to find out the options for then you can make better decisions. Ken

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@maaniverma

New to the community. I am Manish age 23 from India going through Single Side Deafness in my right ear from birth with profound sensorineural hearing loss and I have one normal left ear. I want to know what are the possible solutions for me at present for my right ear and also if my left ear gets hearing loss in the future?

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@maaniverma I'd like to extend my welcome to Mayo Clinic Connect, a place to give and get support.

You have profound hearing loss in one ear from birth. You are looking for possible solutions. You are also looking for solutions if your other ear loses hearing as well.

You will notice that I moved your question to a related discussion. I did this so you could more easily connect with members like
@th1 @dwi @earscan @nla4625 @ken82 @tonyinmi @bigmqama @joyces @barbb.

Already having single sided deafness, it makes sense that you would want to treat that ear. You are also concerned with what would happen if you lost hearing in both ears. Did I get it right when I said that you were concerned?

May I ask how likely it is that you will lose hearing in the other ear?

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