Hearing Loss: Come introduce yourself and connect with others

I was born with Otosclerosis Left. 2011, I had carbo as one of my chemo drugs. I have had two stapedectomies and have lost the majority of my hearing. I do wear HAs R/L. Yet, I am not able to distinguish speech and decided to see the otologist. He said if I want my hearing, I can do nothing, 3rd stapedectomy, baha. I was able to try out the baha and it was amazing to hear without any HAs!

Hello Colleen, I don't recall whether I have introduced myself! Can you advise on that? I do have a question regarding my Med El processor and batteries! Will await hearing from you before posting my question. Thanks!

Hi Barb, you can see all of the posts you've made thus far in your profile here: https://connect.mayoclinic.org/member/176340aa00fa2a6e16762713eba02c928daa37e621/ Are you on a mobile device (phone) or a computer or laptop?

Thank you Colleen. I am mostly on my computer, sometimes on my phone. As far as I can tell there is no focus for specifically cochlear implants. Is that correct?

@barbb, you can learn more about how to use/navigate Connect in the Get Started guide found in the footer of the page. Here's the direct link https://connect.mayoclinic.org/get-started-on-connect/
Other helpful and advance tips can be found on the About Connect page https://connect.mayoclinic.org/page/about-connect/ Filter by the category "Tips and How to Use"

In the Hearing Loss group, there are several active discussions specifically focused on Cochlear implants, for example:
- Cochlear Implants https://connect.mayoclinic.org/discussion/cochlear-implants-2e44a5/
- Cochlear implant for single sided deafness https://connect.mayoclinic.org/discussion/chochlear-implant-for-single-sided-deafness/
- Can a Cochlear Implant be replaced? https://connect.mayoclinic.org/discussion/cochlear-implant-replaced/

You can also use the search to find mentions of Cochlear within discussions. Hope this helps.

I already had a modest amount of high-frequency hearing loss before a car accident earlier this year impaired my hearing further.

One peculiar result of the accident was that, suddenly, certain high-frequency notes in music were bumped up one or two notes in pitch, of all things. I.e., I might hear a high C as the D or E above it on the scale. So, it's not that I can't hear the note; I hear it as the wrong note. Obviously, this ruins Del Shannon's "Runaway" for me ... and many other songs.

And, of course, the standard audiologist, trying to help people hear voices better, has no hearing test for this problem, has no solution for it, and my complaint was even far, far outside the wheelhouse of the ENT specialist I saw.

In addition, the ENT specialist had no idea where to send me for help with this.

Can anyone suggest a way to find a doctor (or institution) that would understand this problem and have some idea what to do about it?

Thanks.

@buzzmccracken I love the name! Sorry about the issues you are having getting your issues addressed to satisfaction. I see Dr. Macias because he is an ear doctor. His information is Address: 926 E McDowell Rd suite 208, Phoenix, AZ 85006. Phone: (602) 257-4228. Best to you!

What'did so did he sell u hearing aids or can you take script to Costco?

My Costco HA experience lessons learned. Stay away from Kireland brand. If you buy Costco HAs they are locked and only Costco can make any changes.

Welcome to Connect, @buzzmccracken You sure do have an unusual problem! I have never heard of such a thing. I doubt there are many audiologists who are practiced in such a unique problem, unless your hearing aids can be adjusted to a different setting. I hope you can find an audiologist who can help you, it sounds as if music is very important to you. I wish I could help more, but as I said, the only thing I can think of is a different setting on your HAs since obviously your hearing cannot be changed. You might want to see if there is a specific brand of hearing aids that is favored by people in the music industry.
JK