Hearing Loss: Come introduce yourself and connect with others
Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.
Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?
Interested in more discussions like this? Go to the Hearing Loss Support Group.
You must be Jim R. Yes. I am that person. Good to hear from you.
Ha Ha Ha, we meet yet again. Hope you're doing well.
Are you planning on going to Naaarlins next summer? (I'm practicing my southern drawl already)
Yes, I'll send you an email.
Good luck picking your audiologist. It is really pretty much just science, but there is some art to practicing well. Then there enters luck. Because we are humans we don't all react the same way to the same treatments. All the audiologists I've met seem to be competent and caring, but they don't always achieve good results.
I agree. It is art and science. I ended up picking one associated with my ENT's office. I also "shopped" around to a private audiologist - and had an appointment scheduled at Costco. At the end of the day, I really liked the audiologist at the ENT's office, not only did he know my entire history -- from steroids to steroid injections to worsening hearing. He knows *me* and was patient as we went over HA options. Also, for me, I want an audiologist that has access and knowledge about many HA lines -- because they are all different, and we likely will need several over the course of our journey. -- Best wishes to you all.
@arrowshooter The difference I have seen is in selecting the best hearing aid for that person’s loss, and in customizing/programming the hearing the best. The last part can be particularly difficult.
JK
Hello.I'm 44. I was told by family members that I have a "busted" eardrum ever since birth. Until recently as I inquire more, the same family members told me I have nerve issues. Not sure why it changed. If that the case and according to all the audiograms(only) I've had over the years, it appears I have bilateral symmetrical sensorineural hearing loss. I'm not convinced my audiologist knows exactly what I have without an otolaryngologist diagnosis. As I research more online about nerve damage, i found there's a host of other possible disorders that go along with this affliction.
I have so many questions and any reply from this forum would be forever grateful. Can anyone tell me if nerve damage means auditory nerve only, or both auditory and vestibular nerve? How one know if they may have balance issues without seeing a specialist? How does your diet play a role in having a healthy hearing lifestyle such as salt intake?(I omitted caffeine)
I've seen a few therapists thinking I have depression. What I believe I have is hearing loss depression. Most of the jobs I had were in a loud environment with constant communication with people. This leads to listener fatigue which leads to fatigue which leads to the concept of depression. Now I know. My fault I guess. I'm my own therapist and I'm suggesting my own therapy routine. Be more assertive with my audiologist(maybe change), join this forum, join HLAA, interact with Blogs, change my diet if necessary, and finally, if possible, find some people in the flesh that have some form of hearing loss whom I can relate to. Will see if I'm successful. I know I will be.
Thanks for listening( I'm sure you heard that before)
@johnny3 From what I know depression goes hand in hand with hearing loss as it gets worse. How bad is your hearing? Mine is now severe in one ear and profound in the other. My understanding of words has also degraded severely. It’s very isolating when in social situations and that is a cause of depression.
There is a private group on Facebook, Hearing Loss Community - HLC. It can be helpful and comforting to communicate with others who face the same problems. If you are on Facebook you might want to request to join.
JK
To everyone in the Northern Virginia area, Hearing Loss Connection aka HLCnova, is a beginning support group of people with an interest in hearing loss information. We gather together on the third Saturday of the month at 10:30 AM at Northern Virginia Center for the Deaf and Hard of Hearing in Fairfax, VA. You are invited to attend and join in the conversation of smartphone apps this Saturday.
Hearing is severe in both. Don't know about Facebook. There seems to be a lot of negativity on there. I have to ponder that. Appreciate the response.