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Hearing Loss: Come introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Feb 5, 2019

Welcome to the Hearing Loss group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with hearing loss, and friends and family supporters. Whether you were born deaf or hard of hearing, experienced hearing loss after birth or with aging, it helps to connect with others. Together we can learn from each other, support one another and share stories about living with hearing loss, coping with challenges and celebrating milestones.

Let’s chat. Why not start by introducing yourself? What is your hearing loss experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Hearing Loss Support Group.

lioness | @lioness | May 12, 2019

@contentandwell Wow that had to be scary Glad you pull over now

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bookysue | @bookysue | May 12, 2019
In reply to @contentandwell "@bookysue Thanks for the info, I guess I will look into it. Right now I have..." + (show)
@contentandwell

@bookysue Thanks for the info, I guess I will look into it. Right now I have a lot of things going on though so it is probably not the best time for me. I just checked out the site and I guess I need to look in more depth. I didn't see what's happening on Saturday or Sunday.

There is no way I would drive myself that far, I tend to fall asleep when in a car! I actually have fallen asleep at the wheel, many years ago, and even now, when I get tired I pull over and take a 15 minute nap to get refreshed.
JK

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If you are within 5 hours of me, I can drive you No sense of direction- I love driving. It’s sounds like this would be good for you

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lioness | @lioness | May 12, 2019
In reply to @bookysue "Flights should not be that bad yet- I am driving 5 hours from Philly. Oh yes..." + (show)
@bookysue

Flights should not be that bad yet- I am driving 5 hours from Philly. Oh yes it is so worth going. My 3 rd year ( my last maybe because of costs) . It has been an interesting time between Mayo and other sights about termioogy - whether you say hearing impaired ( I do) or hearing challenged, etc. folks as a rule are not patient so I would isolate myself. I do interact with folks on the street - saying hi, giving direction, etc bit no real friends. I am moderate to severe hearing loss( born though not correctly diagnosed till 16. The things I learned is the hard work HLAA is doing in loops/ captions, accessible access by docs( text rather than phone calls, ) we have a long way to go still and we must speak up with our docs by ourself/ chapter. We can do subchslyers in homes or coffee shop ( what i will be doing! Because in groups we have a better voice. There are books out here by Bouton (Shout,/Nd other book-very good) El Deafo-an award winning Gralhicnovel and Deaf Sense by Lodge a true novel about a hearing and hearing impaired spouse. I am trying to write a book about my life. Finances are in my way . Go if you can , at least once. Maybe find other folks from your area. I learned so much. One main thing is that I ambit really alone ; others like me and Thst is important in itself.

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@bookysue Will you post some about the meeting as my Hearing loss is severe in my one ear moderate in other and TINNITUS which doesn't help I'd appreciate the information you may get

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bookysue | @bookysue | May 12, 2019
In reply to @lioness "@bookysue Will you post some about the meeting as my Hearing loss is severe in my..." + (show)
@lioness

@bookysue Will you post some about the meeting as my Hearing loss is severe in my one ear moderate in other and TINNITUS which doesn't help I'd appreciate the information you may get

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No problem . I would have done that anyway. The conference is in June ( June 18 through 24 th). They have rates for the exhibit room ( Harris is always there- longest running carrier of products for the hearing impaired- lights, etc)
More and more areas are doing this. They are giving away and installing free hearing impaired smoke detectors. Make sure you take advantage. Also free captioned phones .

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lioness | @lioness | May 12, 2019
In reply to @bookysue "No problem . I would have done that anyway. The conference is in June ( June..." + (show)
@bookysue

No problem . I would have done that anyway. The conference is in June ( June 18 through 24 th). They have rates for the exhibit room ( Harris is always there- longest running carrier of products for the hearing impaired- lights, etc)
More and more areas are doing this. They are giving away and installing free hearing impaired smoke detectors. Make sure you take advantage. Also free captioned phones .

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@bookysue Thanks so much I live in California I only have a cell phone but it has a speaker I use .

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bookysue | @bookysue | May 12, 2019

Yep 3000 miles- shoots. California long before anyone else has free phones for the hearing impaired back when I lived in Ca ( northern part)
Next year on, the convention will be closer to you.

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JK | @contentandwell | May 12, 2019
In reply to @bookysue "If you are within 5 hours of me, I can drive you No sense of direction-..." + (show)
@bookysue

If you are within 5 hours of me, I can drive you No sense of direction- I love driving. It’s sounds like this would be good for you

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Thanks, @bookysue If I decide to go I could have my husband drive me somewhere on your route and meet you there. As I said, I have a lot going on now right now though, so I am not sure. I will definitely consider it.
Are you right in Philadelphia? My daughter's husband lives in Philadelphia, she lives in NYC, but they are constantly back and forth. She loves NYC though and is not anxious to move to Philadelphia. I know he is anxious to buy a home there.

Also, I do have a caption phone. My daughter used to work for the Center for Hearing and Communications in NYC so I originally got it through them but it hadn't been working for a while so they recently came out and brought me a new one. I still generally use my iPhone though, it streams right into my hearing aids.

Do you know where the convention is next year?
JK

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lioness | @lioness | May 12, 2019
In reply to @bookysue "Yep 3000 miles- shoots. California long before anyone else has free phones for the hearing impaired..." + (show)
@bookysue

Yep 3000 miles- shoots. California long before anyone else has free phones for the hearing impaired back when I lived in Ca ( northern part)
Next year on, the convention will be closer to you.

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@bonnysue They have caption phones here Last 10 yrs anyway That's when I moved here from Pa.

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bookysue | @bookysue | May 12, 2019

Great. What we need more than ever is 911 text - please contract counciloerson/ senator, etc because Emercency personnel do not have patience when I call- crazy

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JK | @contentandwell | May 12, 2019

Speaking of phones, @lioness and @bookysue My son just called me to wish me a Happy Mother's Day. He called on FaceTime (which I was not pleased about because I have been around the house all day and my hair isn't even really combed). He asked if I could hear him better on FaceTime than when he calls regular, because apparently his fiancee's grandmother always said she could. When he said that I realized, I was hearing him better, it was more clear than when he calls on the regular connection! So that is something to keep in mind when speaking to family. I have a feeling my son will be calling a lot on FaceTime now so I had better be ready!
JK

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