Hearing Loss: Come introduce yourself and connect with others

Hello! I am Mary Anne and I suffered Sudden Hearing Loss in my left ear about 20 years ago. The loss was moderate and the hearing I had in my right ear compensated. About 3 years ago, with decrease hearing in my right ear, I got hearing aids. This past February I suffered Sudden Hearing Loss in my right ear. I now have bilateral hearing loss that is moderate to severe. The tinnitus in my right ear is awful. I am trying to cope with this new reality.

@ciblue That is wonderful they both are good now My R. Ear is worse then my left I wear H A in both but have had ,still do have TINNITUS Do you have TINNITUS or did you ?

My tinnitus has never been bad. I still have it, but rarely notice it, especially when I'm wearing my CI processors.

Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My loss went from mild at high frequencies to moderate-severe (around 60 db) for all frequencies past 1000 Hz. I have tinnitus - and that is my main issue. I have a good Right ear -- so I could probably compensate ok (still have ~70% of word understanding at 40 db) if it weren't for the tinnitus. My ENT said I could wait 3 months before getting a hearing aid, but seriously, the tinnitus is so bad that, forgive me, I am not sure I can live with it forever. Any suggestions/experiences with which aids help with tinnitus? Does anyone here have the new Phontac titanium B?

Hi, I am Bonnie and experienced sudden sensorineural hearing loss (SSHL) about 9 weeks ago. My loss went from mild at high frequencies to moderate-severe (around 60 db) for all frequencies past 1000 Hz. I have tinnitus - and that is my main issue. I have a good Right ear -- so I could probably compensate ok (still have ~70% of word understanding at 40 db) if it weren't for the tinnitus. My ENT said I could wait 3 months before getting a hearing aid, but seriously, the tinnitus is so bad that, forgive me, I am not sure I can live with it forever. Any suggestions/experiences with which aids help with tinnitus? Does anyone here have the new Phontac titanium B?

@bonnieinarizona Welcome Bonnie we here aren't Dr,s but can help with our experience. I've had tinnitus all my life but when I'm busy don't notice it About 4 yes ago I did get h.a. my R.ear is worse then left Seems like those that have h.a.have tinnitus also. I have Phonax h.a.they go behind your ear I think they have quieted my TINNITUS down but ENT Dr just told me there is no cure Good luck

thank you for your reply. Many people with sudden sensorineural hearing loss have tinnitus that is the same frequency as our hearing loss - the brain recognizes that there is a breakdown in the "circuitry" and trying to signal the inner ear (I am a scientist :)). I am seeing a hearing aid person today -- so I will report back what she says about the latest technology, I know there are several hearing aids that have implemented some sort of functionality that they say helps with tinnitus.

Hi There! My 7 year old son has mild hearing loss. I'm having a hard time finding folks in a similar situation to bounce ideas off of. Is there a group you all would refer me to? Thank you!