Want to talk with others. Have you found relief from CRPS?

Hi sunny flower. The patches I tries were buprenorphine. let's just say we did not get along at all. I have tried the lanocain patches as well but found It was leaving a foul taste in my mouth...strange but true. I have been slowly getting back to work...albeit painful and be very careful. I'm a manager at a landscape company and I'm responsible for the repairs and upkeep for about 300 pieces of equipment. Thank GOD I have a very understandable company and they are willing to work through this with me!!!

Thank you sunnyflowet for your words of encouragement

Hi. I'm very familiar w/ buprenorphine aka suboxone. It's an uncomfortable drug and most people have to stay on it indefinitely. Wow, that's great about your work!!!!! I worked w/ an open wound in my abdomen while I had treatment for it for 5 months, and, with quite a few broken bones, a corneal ulcer (auto-immune), scleritis (autoimmune), and recovering from meningitis-5 days in hospital, don't even know how I got home and didn't wake up until about 3 weeks later! It was awful working w/ so many afflictions! There were others as well. Wow, 300 pieces of equipment!!! That's a HUGE responsibility!!!!!! You go girl! I hope and pray I can encourage and uplift others. I really do. I appreciate you saying that and also want you to know I want you to be honest w/ me. If you don't want me to talk about certain things or whatever, I won't personalize it. Really. Hang in sister! Sunnyflower

OK sunnyflower... we must first clear up one little issue...I AM MORE OF A BROTHER then a sistet... but it's ok I get..I do try and find humor from life and this one did it....LOL...
😂😂😂...yea I work with the small engine department and we have a ton a equipment....not counting the salt trucks...front end loaders...and skidsteers and the list goes on........I will let you know if things bother me. But you are free to speak your mind.....

smallengineguy, Sry, I'm so uniquely talented that way. Geesh! It's the Gabapentin!! Just getting to know who is who but your Mayo name clearly says "guy". Thank you for pointing out my error. I hope I don't mess up again! Blessings, Sunnyflower

Hi. I'm just now see ing these responses to my original text . I'm Dana 44 and have very similar testimony as yours please feel free to share with me anytime God bless

I have CRPS 1 & 2, In my foot and leg. I finally was diagnosed with it in 2014 after seeing quite a few doctors. Am here because the medication hasn't helped in a couple of years now. The Narco and Nerve meds just leave me in a fog. I had a spinal cord stimulator that would shock me all day for 3 years. They accused me of lying and finally Dr. Lubenow at Rush found out the leads were broken. Am tired, I can't sleep really and am very depressed. Really ready to just go home, can't imagine another 5 years like this. Any advise on new treatments.

@neverrest My heart breaks for you. We have much in common. I also was shocked/electric sensations by my DRG stimulator, turned it off finally, and now I burn and have serious sleep issues. First, go immediately to a sleep doctor. I have an appointment with one next week. Second, go to ethanaturals.com and try Kratom for pain and relaxation. Next, try Benfotiamine, a form of B1 vitamin (thiamine) which helps neuropathy, CRPS pain. Look on Amazon and give it a try. They sell it there. It has helped my burning sensations tremendously. Feel free to personally message me if you want. LoriRenee1

Hi @neverrest, welcome to Mayo Clinic Connect. I am so sorry you are dealing with CRPS complications. I agree with @lorirenee1 that you do need to see a physician about your sleeping issue. Sleep is a huge factor to combating pain. You will notice that I moved your comment to a discussion that is ongoing about CRPS. I did this so that you can connect with other members who are dealing with the same thing.

You may also be interested in the following:
Latest Research | CRPS Treatments: https://www.burningnightscrps.org/crps-rsd-support/latest-research/

Promising treatment option for complex regional pain syndrome: https://medicalxpress.com/news/2019-06-treatment-option-complex-regional-pain.html

Complex Regional Pain Syndrome Fact Sheet: https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Complex-Regional-Pain-Syndrome-Fact-Sheet

@neverrest What are you currently doing to manage your symptoms and pain?

mam14, I am dealing with the same as you. It is my right foot that the fascia ruptured. What can be done if anything? I am willing to go anywhere for pain relief. The burning sensation is taking the best of me. Looking forward to hearing from you. Ty!

For your feet the only thing I can suggest I put pillow on floor. then towel to protect pillow then ICE PACKS. then towel to protest feet, sit with both feet on ice, to cll them down. I have same thing .GOOD LUCK