Want to talk with others. Have you found relief from CRPS?

@mam14, @JustinMcClanahan, I have been trying to figure out what has been going on with my feet since 2005. I have researched like a mad woman and my gut tells me I have CRPS. I really hope to heck that I am wrong. I have taken pictures of my feet this past week for documentation. Most of the time they feel cold to the touch and hurt the most in cold, damp weather. If I dangle my feet down and leave them in that position for a few minutes they turn a dusky purple color and get very cold. This brings on a lot of nerve pain. I also have pics of when they feel quite warm and turn red and look swollen. This happened 14 years ago when I had a slight ankle sprain and the pain was very disproportionate to what was only a minor injury. Then soon after the pain spread to my left foot. I saw many doctors who all had a different diagnosis and no one could really figure it out. I quit seeking treatment out of frustration and disappointment. My PCP was very kind and tried to get a referral to go to Mayo but of course it was denied by my HMO plan. I just lived with it and gradually through many, many years it got progressively better until this past January of 2019 my big toe started getting sore and soon all the crazy nerve, burning and all other symptoms erupted again. My Podiatrist was perplexed because my X-ray of left foot showed slight osteoarthritis and MRI looked pretty normal as well. I see the Neurologist on Friday and I will bring in these pics I took and I hope these will help with getting a definitive diagnosis. I saw a Pain Management doctor last week and he doesn’t feel I have CRPS just because I let him touch my foot and didn’t immediately back away when he tried to. From what I have read and understand some people with CRPS can endure light touch. But when he started squeezing my big toe joint and my toes that hurt like crazy and into the entire next day. I would just like to know what others think that have CRPS. I know everyone is different with this disorder. Thank you. -Laura

Hi Laura. Some of what you described reminds me of my Raynauds and my small fiber neuropathy which are both in my feet as well. I just had a nerve study done on my lower extremities and was dx with severe sensory and motor neuropathy in both legs. Just throwing a few things out there for you to investigate. One symptom that stands out as being CRPS is the pain on standing in one spot for a few minutes. I have a great pain management doc who is brilliant at what he does and in his knowledge of CRPS. Besides being brilliant, he is also familiar with his own pain needs which makes him more sensitive to others. Hope you can find such a doctor.

I have CRPS and live in Alabama. I travel nearly 5 hours to a neurologist but I’m not satisfied at all with the results. Where are you from?

I live in upstate NY

I also don't see a neurologist for this but a pain management doctor.

Hi I was recently diagnosed with crps it was caused by a injury on the job, I fell off a ladder and broke my foot in three places.I had surgery and had a plate and pins put in my foot it was healing ok then my foot starting becoming red and swollen and the burning pain is unbareable.I have seen my surgeon and a pain specialist and have pt three times a week it does improve then flare ups happen and im back to square one,im at my wits end and my medical benefits are running out for it . I am basically being forced to return to work still in pain or I lose my medical and life insurance my only alternative is cobra at a payment of over a 1000.00 a month. Im so lost and pain hurts but I guess I return to work to avoid loss of medical for me and my child who is adhd and on expensive meds himself. kevin I live in wa state

I have been taking medications and had some sympathetic blocks put they don't last long the shots that is.The meds help somewhat but have caused me depression and weight gain so im not sure there even worth using.