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Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)
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@sweede536

I live in Lansing Mi and go to the Sparrow Hospital Cancer Center. I know this cancer is rare but in a city of 159,000 I can hardly find anyone else with my cancer.
I've had this stage 3 cancer for over four years . Had several side effects from my infusions. Looking for other people with this cancer

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Replies to "I live in Lansing Mi and go to the Sparrow Hospital Cancer Center. I know this..."
Colleen Young, Connect Director | @colleenyoung | Aug 1, 2020

Hi @sweede536, you'll notice that I moved your message to this existing discussion about Mantle Cell Lymphoma. I did this so that you can connect with members @roberthall0452 @lottajoy and @maxwell123, who also have this rare cancer.

Swede, you mention that you've had the cancer for 3 years, but are experiencing unpleasant side effects from the Rituxan infusion. I'd also like to tag @1nan and @becsbuddy on this discussion as they may have some thoughts to share about the infusion side effects. How long have you been on Rituxan? Great to hear that you're in remission.

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Becky, Volunteer Mentor | @becsbuddy | Aug 9, 2020

Hello @sweede536 I just noticed that @colleenyoung asked me to jump in on this discussion. Sorry. You say that you’re on IVIG and rituxan and that you’re having some side effects. May I ask what they are (other than the skin problems from rituxan)?

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