By the way, there are several Facebook private groups for MCL and a listserv site that is excellent. I'm not a fan of FB even though I monitor what they talk about. The absolute best site for MCL information is acor.org. You will need to register for the Mantle Cell category when you get there. You will learn from many that have been dealing with MCL for years, most very successfully, and they are there to exchange medical information -- not necessarily whine and complain (FB). I believe you will find it to be helpful. Of course, you need the best doctor and center you can find but you also probably want to learn all that you can about the disease so that you can become your own advocate. No one will advocate for you like YOU. Good luck.