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roberthall0452 (@roberthall0452)

Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Sep 28 1:28pm | Replies (87)

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Hello lottajoy,
My Experience: I was diagnosed with MCL in 02/2016.
I was admitted to the hospital with a blood platelet count of 20 after feeling fatigued. My treatment consisted of 5 days in hospital with chemo each day then I was released and had chemo once a week for 8 weeks. The chemo consisted of Rituxin and another chemo that I don't recall, looking for the info but cannot put my hands on it but this treatment worked and I have been in remission for 18 months. I recently went into relapse and am now on Imbruvica and it is showing good results. I am fortunate that insurance is covering this drug because it is very expensive. I did not have any trouble taking the chemo which seemed like a walk in the park when comparing it to the radiation I experienced in 2013 for esophageal cancer which is completely behind me. Please make sure you have a doctor that you feel very good about, it took two trys for me. Look forward to seeing where you go with this and will be watching for you. Best Wishes!
I am a 74 year old male in otherwise good health and I am active in tennis and working out at the gym, plus I watch what I eat.

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Replies to "Hello lottajoy, My Experience: I was diagnosed with MCL in 02/2016. I was admitted to the..."

Thanks for sharing

I'm a 74 year old Male and have MCL since 2016. I get two infusions every 6 weeks. Right now it in remission.

I'm 74 and have stage 3. I've been on retuxin for 3 1/2 years and have had alot of hand skin problems. Seems like everyone I'd off retuxin after two years. Have a little skeptic
About my doctor.