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roberthall0452 (@roberthall0452)

Mantle Cell Lymphoma

Blood Cancers & Disorders | Last Active: Aug 30 12:05pm | Replies (48)

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@maxwell123

Thanks for the invite. I was diagnosed in 2/2014 at age 69. My disease presented in the bone marrow and kidneys. I had no symptoms. Kidney presentation is very rare. I had chemo and was in remission after 3 monthly treatments. I followed that with two years of Rituxan. I spent 3 years on dialysis and was able to come off after many lifestyle changes -. and without a transplant (a miracle). At the moment I am in remission. I go to MD Anderson for my disease. I came here because I still have low kidney function and am looking for ways to improve.

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Replies to "Thanks for the invite. I was diagnosed in 2/2014 at age 69. My disease presented in..."

Another reason for showing up here is that when the time comes for another treatment, I want additional guidance on the type treatment that is least likely to impact my sick kidneys.

Confused. I've been on retuxin for 3 1/2 years. I've had many side effects. Esp. With my skin.